I'm too ill to read the thread, so pls forgive me if i repeating what is all old news now, but i only just a few days ago been able to read a...
:) Yes, interesting. A friend was the other day saying how exhausting she finds travelling on the train. I guess it seems different to me,...
Gosh. So looking at 'energy' use in any usual sense might be completely a red herring?! Wow.
Ah, yes I see what you mean. I think thats something I havent understood. At all. In my 'lay' mind, and from the point of view of my experience of...
Dont lets base that on what I've said - perhaps I am alone in that. From the travel (ambulance or otherwise) point of view, it actually takes a...
I've woken this morning feeling dreadful about what i said. Who the hell am I to comment about any of it really - I'm not in that situationand the...
We want Karen to live, and, should anyone from her friends/family/loved ones are reading this, we passionately want Karen to live.... to get the...
exactly this
I know we have no proof. But it comes back to people not really recognising that travel is exertion, the same way that sensory stimulation, or...
Yes I do see what you're saying... I think? Would I be right in thinking that while you may well believe PwME that it will make them worse, we...
The problem is that being transported will definitely produce PEM, the evidence for that, the only evidence we have, is umpteen people with severe...
completely agree, I think an inquiry before we either get rid of the old guard, or we have absolutely rock solid evidence of biological...
i just, i dont even know what to say :heart::heart::heart:
Sounds like you've been having a really tough time @Aldebaran's Star , I'm so sorry. I'm afraid I dont know that much about the current state of...
54% reached today, 10 days left
thanks @Louie41
Im interested in this, wired but tired is a massive issue for me, would like to look into that... have you written about it elsewhere on the...
This just makes me so bl**dy angry on your behalf. I know some doctors are great, but really, so many of them just behave like complete arseholes...
Sorry @Louie41 TATT is short for Tired All The Time - a ubiquitous cause for GP consults. ie being tired all the time but little else in the way...
Forgive me if this has already been said, i'm not able to read/absorb much atm. But it seems to me the most appalling multifaceted catch22 as...
Separate names with a comma.
