It’s my view that due to years of neglect, ME patients are among some of the most proactive people I’ve ever spoken with, doubly so when you...
Blog posts like this often strike the tone that there’s a big silent majority in favour of this view. From what I’ve read (social media, blog...
I know this figure is used a lot, but based on completely unverified and anecdotal evidence, I think that 25% figure is inaccurate and the real...
Is anyone aware of what group this is? Might be worth someone with writing experience getting in touch with some members
I wouldn’t say it was that bad. The only two lines that leap out to me are the ones about ‘inner strength’ and ‘not letting ME stop you from doing...
I don’t like it, for many of the reasons already outlined by others in this thread. I also accept that we all do advocacy in different ways, and...
I thought this was an interesting podcast to listen to from way back in the early 2000s. Specifically, it shows how if people unquestioningly...
Pretty good, yeah. For those who are thinking of diving in: Visits with two severely ill patients, a brief insight into mild ME, a visit to the...
Gosh that’s a lot to read. Thanks very much, I think I’ll have to tackle this over a series of weeks, haha.
Have these been uploaded anywhere for viewing?
I was careful to phrase my initial comment but perhaps not careful enough - I am really happy that this has been done and all the levels of...
Presenter says she got better through yoga, diet, and a positive attitude, but despite the potential pitfalls of such a statement this looks like...
Pretty good, encouraging. He’s right about that window of opportunity too. Unrest is done, millions missing protest is in a week and the next...
My only (very basic) grasp of science has been entirely created by the fact that I became ill with ME, so take this with a pinch of salt... The...
A year of work for $100k seems very reasonable, I hope all people with ME would consider donating if they are able.
I agree that we should call him out when needed, but I feel like the battle isn’t going to be won via Michael Sharpe’s Twitter account. If that...
I agree with this. I think we as a community need to change focus a little and stop spending so much energy bombarding him with tweets and...
I would echo this. Make it as public-facing as possible. Frankly we have Twitter and forums to talk about the same issues over and over, I...
Just posting this here - I ordered this kit as part of the promotion but never got round to using it. I don’t think I will now...so would anyone...
Have been thinking about this a fair bit recently. One of the most common forms of advocacy with this illness is stressing how debilitating it is,...
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