Thank you so much @Skycloud! The following is not directed at you, just some general spontaneous thoughts on the situation in Germany (in no...
Yay, @Andy was so nice to share on the Science for ME facebook page:[MEDIA]
This is just a tiny start but I thought about writing an article for the international MEAction website. My English isn't good enough and would...
I totally agree but I think you mean the Swiss forums (symptome.ch) and I meant the German forums (cfs-treffpunkt). But it's the same in both...
It's so sad. I posted in the only German forum about the guideline yesterday and not a single answer so far. People should be enraged but they...
The German Association is the only party involved who has issued an official complaint about the report (the guideline process and the content) at...
Prof. Scheibenbogen (as head of EUROMENE) is cited only once in the Methodenreport on p. 94. It's strange that they don't show any of her...
Strangely the letters and interventions from the Lost Voices Stiftung are missing from the "Methodenreport" document. I asked the German...
Some of the reactions from German pwME to the new guideline can be read in the comments of this facebook post. [MEDIA]
The following quotations are from a letter from the head of the Fatigatio to the guideline committee. It's published in the "guideline report"....
Answers of the guideline committee to 17 pages with sources, citations "Explanation" why the definition of "rare disease" doesn't matter....
As other guidelines they rely on the guideline-committee names: 1. Guideline from Dutch GPs about MUS 2. Sleep 3. Unipolar depression
Thanks for tagging me @MsUnderstood! :) I've ordered stuff from Eleanor Stein before after I saw a video about her great work but can't remember...
I know it sounds stupid because I volunteer for the German Association and like an advertisement. But it's rather the other way around and I chose...
I have to check out the details. It says 3 authors, but there were the 3 German NGOs and as far as I know at one point Prof. Scheibenbogen and I...
When the German Association tried to reason and work with them and listed all the evidence and science, DEGAM mostly answered in one sentence:...
As a comparison to NICE: This guideline had 3 authors.
The Charite in Berlin isn't mentioned at all. The DEGAM (the author) is even located in Berlin.
Now the positive stuff: I was surprised to see in a subordinate sentence that it might be sometimes ok to treat sleep and pain. And they even...
The patient-info for CFS (included in a flyer on tiredness): Perhaps you have heard something about this term in the press. There is a small...
Separate names with a comma.
