Thank you so much to everyone who contributed and to those who put so much into drawing up the submission.
4% of funds raised, 43 days left. They’re looking to raise $50,000.
^^^ The Physios for ME section begins at around 27.40 minutes into the video
I'm worried about GETset Julie, how will she manage? We're very very selfish indeed putting our needs before hers, and we should all have a long...
Good news - thank you @Dx Revision Watch.
Because he’s moved his retirement goalposts.
Thank you Jonathan, that’s just as I thought, that there isn’t any evidence of a process of deterioration in connective tissues due to MCAS or...
Moved post I’m hesitant to ask this question it seems so basic. What if any changes in relevant connective tissues have been directly and...
The space between @Jonathan Edwards position, and @Binkie4 and @saltcaramel’s position needs filling with good research. Current research into...
Don't wear your smartypants over your tights?
Interesting diagram. I know a little bit about how people might read visual shapes and composition (art training). It's interesting that...
This so much. I've been reflecting a lot on this recently in relation to ME. The structural spinal issues (and this is not a thread for...
He's trying to save his employers a lot of money: (my bold)
Health insurance, business insurance, life insurance - there's a lot of insurance products in all this, especially in the US. It's not an area I...
found this: https://www.amazon.co.uk/Mask-Filters/b?node=1939583031
That makes sense to me, Kitty. Potentially that could describe a family member who has an hEDS diagnosis. She experiences subluxations in multiple...
On the subject of returning to work and government advice; I have 2 siblings that work for the UK government - one for the Ministry of Justice in...
Obviously there’s a context where views vary in the ME community around the area of study in this paper I’d prefer if posts in this thread were...
I don’t think that’s frivolous @ Trish - the complexity of activities in real life varies and that’s the sort of thing that people wonder about...
A very worthwhile exercise @Graham. From my guineapig perspective I went through your list and had a total of 7 things I can do, but afterwards...
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