Well, I think it goes without saying that we all appreciate your efforts! I remember how hard doing academic humanities work was with mild ME, I...
Could this explain worsening through exercise/exertion? As in this itaconate and ROS response is triggered over and over and more frequently each...
Perhaps someone should email Rob and invite him to come on here and discuss this? I remember he was still occasionally posting on Phoenix Rising a...
Very clear thank you. Just one more question - when you say solution here, do you mean the sort of biological-mechanical solution to the 'problem'...
https://en.m.wikipedia.org/wiki/Gene_knockdown Ah interestingly I googled the phrase, came up with this and decided it wasn't relevant! But...
By knock down data do you mean like the knock your socks of eureka moment data? Or something else. Also are you saying that the particular...
Anecdotally I am in an international long covid support group because my ME got much worse from covid and I would say that a huge proportion,...
Thank you that's perfectly clear. I thought I must be getting mixed up somehow! Brain fog and not being a scientist make these conversations...
So are you saying that there may not be as strong of a relationship between itaconate and type 1 interferon as other studies suggest because they...
I have that freezing thing. I have been experiencing it more recently. As Jem describes, freezing for 3-10 minutes then it loosening up. Sometimes...
On the subject of DecodeME, @Andy @Jonathan Edwards Can you provide any update on when DecodeME is due to publish? Or is it still 'as soon as...
It is really unpleasant. I have gotten used to the more background level stuff, but to have your brain be like 'no, you need to die' and not even...
Just anecdotally, I have suffered from suicidal ideation since my late teens. It became much worse when I got ME, has become even worse as my...
Yes I completely get what you're saying. It's very interesting the similarities and differences in experience. FWIW I have a lot of autistic...
With respect, and not to minimise your experience at all, but I had very similar experiences of constant conditioning to perform 'masculinity' I...
That's entirely understandable. I wasn't expecting a phase 3 but this does look like a rehash of the pilot to me, rather than a step up.
I suppose so. I just want this drug tested thoroughly and as fast in terms of potentially getting it out to patients (if it works) as reasonably...
No mention of blinding or placebo, and only ten pateints again? Disappointing imo.
Yep also same!
As someone with quite severe cognitive PEM, the thing that most reliably triggers it is keeping track of mutiple variables at once. So for...
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