Thanks, that's very clear. Fingers and toes crossed then I suppose!
I recently had an infuriating run in with a doctor online who was going on and on about the 'well documented' mental health connection with ME....
I'd like to ask you a little bit more about this if you dont mind: Could a drug to order really be made available so quickly? I was under the...
I understand. I am certainly not advocating for gung ho administration of anything and everything. I am afraid im out of spoons so cant reply further
We are in agreement there!
I do agree with a lot of what you say and I sympathise with your concern about safety for trial participants. And I'm sorry to hear about the...
Frustrating non answer. I've been so curious as to why they are trying this. And wishing it was a shorter trial - 2029!! End date! But interested...
Since you ask, here are some examples of projects I would try and fund if I had the capital: Replication studies on small but promsing ME and...
Okay that's fair enough. But so many of our medical professional advocates do seem to believe that we are simply getting no help, when the reality...
Dr Edwards, I speak for all of us who have been harmed by medical neglect and gaslighting when I say that is something that the NHS can do: teach...
This idea is fantastic, and I really hope you lot can make it happen!
To be clear about yesterday, I never meant to argue that we had a clear case of research misconduct. I am outraged that lying to and decieving...
I don't see how using a biomedical study which participants have been promised will move the field of ME research forward and help find biomarkers...
Okay but the way that a BPS researcher took over this biomedical trial of ME patients and twisted it to fit a psychological/psychosomatic lens is...
Just because the establishment is reluctant to address misconduct doesn't mean we shouldn't be very clear about what has happened, and if that...
So much good news this week :banghead:
Every time I see that scale I think about her 'that must be a very healthy anxious person' comment about someone worsened by GET. Every use of...
Yeah this is now looking like the medical research equivalent of regulatory capture. It's deeply disturbing and should never have been allowed to...
The Decode ME project has a huge amount of patient trust, to the extent that I answered fully about my mental health history in the questionnaire,...
I am trapped on pregablin (75mg X2 daily) after five years. I went on it for 'anxiety' (actually ME related symptoms) and planned to be on it for...
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