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  1. V.R.T.
    Post

    Ampligen in Phase 2 Clinical Study for the Treatment of Post-COVID Conditions

    Can anyone quote this thread for those of us not on the dreaded X/twitter
    Post by: V.R.T., Nov 10, 2023 in forum: Long Covid research
  2. V.R.T.
    Post

    OMF: Muscle Biopsy and Plasma Study into Post-Exertional Malaise, David Systrom, 2022

    When I was mild I took ibuprofen almost daily to function, although that was when I already felt flu-ish.
    Post by: V.R.T., Nov 10, 2023 in forum: ME/CFS research news
  3. V.R.T.
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    I'm so sick of false hope, when will something pan out for us?
    Post by: V.R.T., Nov 10, 2023 in forum: ME/CFS research news
  4. V.R.T.
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    I am genuinely surprised yes. I've been following ME research closely for 3 years and I'm genuinely surprised. And gutted. Maybe it'll still be...
    Post by: V.R.T., Nov 9, 2023 in forum: ME/CFS research news
  5. V.R.T.
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Oh Lord, if that really is true after all this time and all of this hope they've built up... Prusty eat your heart out! No honestly this is...
    Post by: V.R.T., Nov 9, 2023 in forum: ME/CFS research news
  6. V.R.T.
    Post

    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    After seeing the disappointed responses online, I think it's still unwise to be hyping up a simple clinical trial like this when Ron Davis is...
    Post by: V.R.T., Nov 1, 2023 in forum: ME/CFS research news
  7. V.R.T.
    Post

    The LIFT trial (OMF) - Pyridostigmine (mestinon) and Low Dose Naltrexone (LDN)

    I was ready to curse the omfs name if they were indulging in a Prustyestque overhyping but this is genuinely good news! We've needed this sort of...
    Post by: V.R.T., Nov 1, 2023 in forum: ME/CFS research news
  8. V.R.T.
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    I will DM you at some point then. Hope you feel better soon
    Post by: V.R.T., Oct 8, 2023 in forum: UK clinics and doctors
  9. V.R.T.
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    You're welcome to message me with your experience if you'd rather.
    Post by: V.R.T., Oct 3, 2023 in forum: UK clinics and doctors
  10. V.R.T.
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    I have looked into this drug and it's supposed to slow the effects of ALS not reverse it. Would it be doing similar here, i.e preventing...
    Post by: V.R.T., Sep 20, 2023 in forum: ME/CFS research
  11. V.R.T.
    Post

    Sudden realisation(trigger warning)

    Thank you. I apologise for derailing the conversation here. I have been in poor mental health, and should have heeded the trigger warning.
    Post by: V.R.T., Sep 3, 2023 in forum: General ME/CFS discussion
  12. V.R.T.
    Post

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    Thanks everybody!
    Post by: V.R.T., Sep 3, 2023 in forum: UK clinics and doctors
  13. V.R.T.
    Post

    Sudden realisation(trigger warning)

    I just struggle to accept that I asked for help so many times and was convinced I was physically ill in spite of them, and then my GP gaslit me...
    Post by: V.R.T., Sep 3, 2023 in forum: General ME/CFS discussion
  14. V.R.T.
    Post

    Sudden realisation(trigger warning)

    Do you all really believe there is no hope of a treatment? That Scheibenbogen and other European researcher's will turn up nothing in their...
    Post by: V.R.T., Sep 2, 2023 in forum: General ME/CFS discussion
  15. V.R.T.
    Thread

    Anyone seen Dr Bansal, Dr Lulsegged or Paul Jenkins ?

    Hey all My cardiologist (Dr Gall) is talking about referring me to one or more of these specialists. Has anyone seen them and were they helpful?...
    Thread by: V.R.T., Sep 2, 2023, 24 replies, in forum: UK clinics and doctors
  16. V.R.T.
    Post

    Well-known, famous people with ME/CFS (public thread)

    Running utterly destabilised my mild ME and I never recovered. Seeing stuff like this is so worrying.
    Post by: V.R.T., Aug 30, 2023 in forum: General ME/CFS discussion
  17. V.R.T.
    Post

    David Systrom, researcher, Brigham and Women's Hospital, USA

    Is this the sort of thing that could be tested for easily? Has it been ruled out for most pwME?
    Post by: V.R.T., Jul 25, 2023 in forum: ME/CFS research news
  18. V.R.T.
    Post

    Poll - Have You Ever Believed In Psychosomatic Illness?

    I believed in it, though I didn't think it applied to me for a long time despite what some docs had said. Then I became convinced I might be...
    Post by: V.R.T., Jul 17, 2023 in forum: General ME/CFS news
  19. V.R.T.
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    If I hadn't listened to this shit, and excercised and pushed, I would be able to go downstairs right now, make myself breakfast and wander into...
    Post by: V.R.T., Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  20. V.R.T.
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    It's just endless isn't it? Reading what Chalder said in the Graun about lives being destroyed, while lying in bed because my life has been...
    Post by: V.R.T., Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
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