Agreed, funding and replication studies are desperately needed And I avoid them like the plague after the one I was speaking about.
Oh he was a terrible doctor, at least as far as I was concerned. I came to him because I had deteriorated to moderate from excercise and he tried...
It seems to me that the ME research community cannot afford to be overhyping admittedly interesting findings like this. I have literally had a bps...
Why did he have to hype this so hard? What was the point of giving desperate people false hope?
Honestly between this and P.T. Prusty's Marvelous Biomarker Circus I can't decide which is the most infuriating!
This is precisely the kind of experience we should collect - currently stories like this are just floating around on twitter/Reddit etc. If we had...
I agree wholeheartedly. For this project I was thinking about people who have undergone GET or had informal advice etc. who accepted the mind body...
That could be very good indeed. I have no idea how one would achieve such a thing though. Perhaps if we approached some researchers? Or David...
The closest thing I can think of is the dialogues for a neglected illness video series. I was thinking something solely focussing on bad outcomes...
It has occurred to me that it might be useful to collect testimonies of people like myself who accepted a psychosomatic theory of their disease,...
It is just insane that someone can report the symptoms of ME to a doctor for almost four years, not be warned off excercise, worsen themselves to...
I literally cannot believe how badly trying to cure ME with excercise can worsen the condition. It was like pouring oil on a small kitchen fire...
Sure am glad I got my hopes up...
I don't think that legions of sick and house or bedbound people should have to 'beware' when they read tweets from someone who is supposed to be a...
Anyone else feel like they're being grifted? Oh no you don't get the whole biomarker yet even though that's exactly what I said a month ago you've...
I quite agree that just a biomarker could be transformative. But deep down (and I know I'm not the worst off) I want to know I won't spent the...
I really can't stress enough how much this announcement has messed me up mentally. I've not been this anxious since the NICE guideline furore....
This is the first time I've felt genuine hope in two years. I hope prusty is really onto something here. I feel like if he was bullshitting at...
If what you say is true we may as well all give up. No more campaigning, no more s4me. I can't face the future you keep describing. I suppose it...
This had better actually be something otherwise it's absolutely abhorrent to play with people's hopes this way. People like me can't cope with the...
Separate names with a comma.
