Indeed. I didn't try to GET myself until a sympathetic (as opposed to dismissive) GP said he believed me but convinced me my symptoms were...
I have my issues with Nath (where's the f**king intramural study?!!) but I genuinely think this was quite a noble thing to do. I wish more...
I wrote a short book and a bunch of music and then I crashed for three years and never recovered Those stories do my head in and make me think of...
When mild I essentially dosed up on ibuprofen daily for years, which masked the severity of my symptoms and led me to write the illness off as...
How likely do we think it is that as Black speculates, Wessely used his new position to block more funding for ME research? A lot of people were...
I know science takes time but they are really taking the piss at this point. People need this research to come out yesterday!
Thank you Jonathan, that's reassuring.
Anyone have any experience with Dr Stephen J Wroe in Ipswich? Been referred to him for extreme neurological symptoms I was getting in December. I...
Anyone got any experience of withdrawing from pregabalin? I have been on 75mg for anxiety morning and night (150 a day) for four years. I am now...
Insane. An insult to everyone who has suffered and died because of Wessleys handling of ME. Bodes very ill for the future of me and LC in the UK
I had two jabs last year. Around the time of my second (sept 21) I was in a flare up from moving back into my house after months at my parents and...
Actually, I know this isn't the place but if anyone knows of any orgs collecting stories like mine for use in attempting to change rules, improve...
I really struggle with anger and self blame over the situation, to say nothing of grief for the life I didn't have to lose. If I could write more...
I had undiagnosed ME for three and a half years BEFORE I became convinced that the fatigue was partly psychological. I was convinced I was...
My birthday is coming up and I'm wondering what you lot think the best charity would be to ask my loved ones to donate to - the ME association?...
What we need is physicians like this sticking their necks out and publically countering this narrative in the media and among their colleagues...
Thank you. And I agree. More professionals need to challenge these narratives so the public can see it isn't a universal view.
My heart sank when I saw his name. Very disappointed in The Atlantic for publishing him. The worst thing is that every time I read something like...
https://www.theatlantic.com/ideas/archive/2022/10/long-post-covid-symptoms-mild-cases/670469/ The Atlantic hedging it's bets after the brilliant...
Yes I worry about that. I could not tell the difference when mild and undiagnosed and jogged/worked myself into a moderate and largely housebound...
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