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  1. V.R.T.
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I completed the study today and wasn't chosen to take part. It is quite disappointing on an emotional level even if intellectually I entirely...
    Post by: V.R.T., Sep 24, 2022 in forum: Recruitment into current ME/CFS research studies
  2. V.R.T.
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Slow brain day here too!
    Post by: V.R.T., Sep 21, 2022 in forum: Recruitment into current ME/CFS research studies
  3. V.R.T.
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    Just to clarify I absolutely encourage everyone to take part, in case that wasn't clear.
    Post by: V.R.T., Sep 21, 2022 in forum: Recruitment into current ME/CFS research studies
  4. V.R.T.
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    My only concern is that by excluding people with common co morbidities (if that is indeed what is occuring), is there not a chance that Decode...
    Post by: V.R.T., Sep 21, 2022 in forum: Recruitment into current ME/CFS research studies
  5. V.R.T.
    Post

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    About bloody time!
    Post by: V.R.T., Sep 13, 2022 in forum: News from organisations
  6. V.R.T.
    Post

    Falling down the biological rabbit hole: Epstein-Barr virus, biography, and multiple sclerosis, 2022, Ralph I. Horwitz et al

    Folk psychology becoming increasingly more deranged...
    Post by: V.R.T., Sep 5, 2022 in forum: Other health news and research
  7. V.R.T.
    Post

    JK Rowling new book — chronic illness references

    I agree with a lot of what you're saying here, but just to clarify I meant that we as ME patients might do better to counter the 'whiny negative...
    Post by: V.R.T., Sep 5, 2022 in forum: General ME/CFS discussion
  8. V.R.T.
    Post

    JK Rowling new book — chronic illness references

    I wonder if this might not be approached as a teachable moment in regards to why people with ME tend to have a more bleak outlook than suffers of...
    Post by: V.R.T., Sep 4, 2022 in forum: General ME/CFS discussion
  9. V.R.T.
    Post

    The Guardian: I gave up hope of a cure for my chronic condition. And it’s made me happier than ever before

    I found this article a little upsetting, as someone who had a similar quality of life to Khan Harris for nearly four years. I then became bedbound...
    Post by: V.R.T., Jul 30, 2022 in forum: General ME/CFS news
  10. V.R.T.
    Thread

    The Expectation Effect - David Robson BBC

    https://www.bbc.co.uk/programmes/articles/3gxJbg6f1FDv4tzrbtfp1Y3/how-your-expectations-can-transform-your-life Steam came out of my ears when I...
    Thread by: V.R.T., Jul 22, 2022, 3 replies, in forum: Other psychosomatic news and research
  11. V.R.T.
    Post

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Unfortunately I think it was a closed conference (researchers only). I really want to know what he said (if anything)!
    Post by: V.R.T., May 24, 2022 in forum: ME/CFS research news
  12. V.R.T.
    Post

    Long Covid in the media and social media 2022

    This happened to me after worsening to severe following Covid. Cardio recommended intense physio... The rehab team called me and said no way are...
    Post by: V.R.T., May 9, 2022 in forum: Long Covid news
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