Why should the onus be on us to use the precisely correct term to prove we are good little patients and not hysterical secondary gain seekers? The...
The long covid clinic I was under was Wesselyite through and through. Hopefully DecodeME points the way and the good SirDoctorProfessor quietly...
This, I think, is a huge problem with no clear solution. The amount of stigma that needs to be present for someone like yourself to be afraid of...
The repeated use of 'chronic fatigue syndrome' and the other mental health conditions mentioned don't exactly fill me with hope...
Is anyone watching? I registered but can't spare the spoons to watch right now.
Yes there are absolutely studies that could do with replication attempts for this and other reasons. I think this would be a good use of...
My experience with a private rheumatologist was that he listened to my story of worsening through exercise, prescribed GET which i declined, did a...
Alright, tell me why this is too good to be true... Okay done a bit more reading before I hit post. This looks genuinely promising to my...
I would want to talk about how easy it can be to worsen a mild case into a severe one with intense exercise and hard work. How you can destroy...
Just to clarify, is this a replication of the Australian studies from Griffith Uni we were discussing/criticising a few weeks back for having no...
Why on earth wasn't this their target group in the first place given that they claim it works for ME? Honestly if ampligen turns out to be...
Yes i apologise I realised my post was pulling the thread off topic after mods had already moved posts.
Unbelievable. In the 'what can be learned from ME and related conditions talk' they have Nath as the sole voice of ME researchers. The NIH is...
Agreed.
Agree with what you say about the goal being understanding enough of what's going on to develop treatments, not a diagnostic test. But having one...
This will be used as evidence not to close schools in the next pandemic, which will cost lives. Really really irresponsible. Not surprised it...
Honestly wasn't aware of this ad campaign but it's sickening. It's not only pwME that can't exercise/move their bodies. Using disabled athletes as...
This is somewhat heartening but I wish institutions/companies would just fund ME drug studies, instead of saying 'oh maybe that at some point'....
Yes I am sorry to hear about your patients. That sounds awful. I didn't mean to minimise that harm. I know Sharpe has never actually said people...
I understand your point, and I'm not saying that alternative treatments that don't work are harmless. But I don't think what the likes of Sharpe...
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