Are we talking about Fibromyalgia here or neuropathy? In my experience Fibromyalgia is a term often used by doctors to label a patient as...
https://en.wikipedia.org/wiki/Fibromyalgia#cite_note-Goldenberg1999-41 I was browsing the Fibromyalgia Wikipedia article when I came across this:...
One of the authors is Brian Walitt. Is that the same Walitt who is a quack who states (without adequate evidence) that ME and Fibromyalgia are...
I agree that ME isn't a good name for our illness (for multiple reasons) but people who suffer from an adverse reaction to exercise or exertion...
This is an example of medical Gerrymandering (Moving the goalposts, dishonest definitions). It's interesting that they admit they mean...
The problem is when you get people with only chronic fatigue (and no exertion intolerance) claiming that they have ME, it devalues and trivializes...
Does anyone else remember when Dr. Kenny DeMeirleir was diagnosing most ME patients as having Chronic Lyme Disease and prescribing long term...
@10:30 She claims BPS is a more human approach but in my experience (as it's practised with severe ME) it's inhumane. I was sectioned and told...
I think we could be shooting ourselves in the foot by mentioning that emotional effort exacerbates symptoms, an outsider reading this may conclude...
This is old news but I thought it's worth posting:...
Ouroboros reminds me of series 7 of Red Dwarf with Lister going back in time to become his own parent. As for fatigue, before I got ME I had...
Haven't read it but let me guess: They have absolutely zero evidence for their bold assertions.
I have very severe ME and I don't normally (if I get enough sleep) feel any fatigue.
My brain fog depends on how much / what quality sleep I get. The effects of sleep deprivation being cumulative. At my old house I was suffering...
I believe in true ME / real ME but I don't think CFS is fake nor do I think it is psychosomatic. I think the confusion harms those with ME.
https://www.s4me.info/threads/bad-me-quotes-general.8918/
I've been meaning to start a thread about the history of psychogenic attribution but looks like @chrisb beat me to it. Here are a few links I...
It says 59.6% of members thought alternative medicine was helpful. I'm worried that if people read that they will conclude that ME is psychosomatic.
The UK population is currently 66,650,000. 0.76% of that is 506,540. There's no way that many people have genuine ME, chronic fatigue may be but...
Over the counter pain meds don't work on my ME pain. I use to take Gabapentin but it doesn't prevent payback, and often makes me exert myself....
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