With people like Wessely you have to listen to what they don't say as much as what they do say, where in his long distinguished career has he said...
In my experience that's just gaslighting when it comes to ME, they don't treat you as if your symptoms are real.
I think that over population is an issue. If every woman in the world only had one child until the earth's population is 10% of what it is now...
Does anyone know what ME criteria they are using for this study? I'm not happy with that figure, I think it's based on the flawed 1994 CDC...
In regards to the FIQ, by default I'm in no pain but I'm very severe, I'm limited by how low my threshold is. Scales need to measure the threshold...
Pain catastrophizing is just a modern word for hypochondriac. It shouldn't be applied to anyone without objective proof.
I believe it was Simon Wessely who called it a brilliant move of diplomacy or something to that effect.
I've never heard of a country where doctors recognise ME. Does anybody know of one?
Thanks to lockdown and complicated circumstances, I've been left without any one to shower me and haven't had a proper shower since March.
ME is an adverse reaction to exercise or exertion not merely fatigue. I don't think it's fair to call this a trial for ME patients. Imagine if...
@29:00 I really want some peanuts now.
Remember to track patient's PEM threshold as this is a very important indicator of disability.
Exercise or exertion caused indefinite worsening in 55% of patients and also some cases of long-term worsening according to this poll:...
ME is an intolerance of exercise & exertion not fatigue. She really should have mentioned long term PEM/payback, that's the most important thing...
Funny, my old doctor told me, "You can't be that ill, you've only got CFS" when I explained I couldn't get to his office for an appointment and...
[MEDIA] Sounds too good to be true.
It doesn't define PEM. It should mention that adverse reactions to exercise in ME can be long term, even permanent.
Found this on an old USB stick: [ATTACH] From googling I found it quoted here. It amazes me how fast Google can search the web.
[MEDIA]
Very severe bed-bound, unable to talk. How do I get on the government's vulnerable people list? Tesco are fully booked for this month. My carer...
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