As already mentioned, a Twitter account had been created in April for the One Name Campaign. That account @onenamecampaign has also been...
I note that the https://onenamecampaign.com website has been taken off line this afternoon.
I have received a response (dated August 9) to my email from Laurie Jones, Executive Director, #MEAction: Laurie says that #MEAction had signed...
You're welcome, Sean. A pleasing start to the day. Still nothing from #MEAction, though. The response from Ms Maslyk doesn't say whether OMF...
Update on my correspondence with OMF: This morning I have received a response from Ms Janis Maslyk, Open Medicine Foundation to my request for a...
According to presentation moderator, Michael Bowker, they are going to be visiting various companies to learn from them how to "rebrand a disease".
I've listened again to Smith, from 29:18 to the end. There is no longer the bit where he quips that the "umbrella term" could be named after him -...
My takeaway from the sections of the presentation that I have watched so far, is that Dr Joseph Smith considers his Atlas Health practices...
Well this is getting very dirty. A segment of the launch video has been edited. The redacted segment included the P-60 comment. Note how the...
The originator has it as #notonename ie #NotOneName I'll add caps in future when I use it for better clarity.
Kitty, the 16 June launch presentation was held at La Lieff and promoted as a "winetasting event and conversation". "The public is invited to a...
Another source for June comment from Amitay:...
Dx Revision Watch @dxrevisionwatch 44s @PlzSolveCFS 16 June: "'Amitay . . . is firmly behind the move to rename some of the confusing names...
Pike Wielder @PikeWielder [IMG]
Indeed, essentially: a) We don't support the campaign's objectives. b) But we will continue to support the campaign because we feel promoting...
Wow - what a bullshit response from SOLVE M.E. Solve ME/CFS Initiative @PlzSolveCFS 27s This campaign is an artistic expression by a community...
If Twitter users want a hashtag, a few of us have started using #notonename
Here's another page that has turned up on Bing (I've swapped to Edge to see whether the "More" tab with the dropdown menu will load on Edge, as it...
I agree, but hasn't that horse already bolted? Isn't SOLVE going to find it a little tricky to distance itself, given that Oved Amitay has...
Jeez! Hello, and thank you for contacting Open Medicine Foundation (OMF). Due to the high volume of inquiries, we cannot guarantee an individual...
Separate names with a comma.
