I've emailed OMF and messaged MEAction via their website contact form (they don't appear to offer an email option). The dropdown Menu where you...
Hillary Johnson: journalist @oslersweb https://youtu.be/j9UYPBa4ba0 Lightweights sipping wine in Santa Barbara on a mission to "re-brand"...
https://www.onenamecampaign.com/illness "...It is time that we bring this ole' horse out of the rain and give it a group name. "Names over time...
Indeed: https://www.onenamecampaign.com/illness "...Unsurprisingly, these individuals developing this complex array of multi-systemic symptoms...
Dx Revision Watch @dxrevisionwatch @MEActNet Will your board please issue a position statement on your organisation's involvement with and...
You have to wonder whether #MEAction and IOM are even aware of what the One Name Campaign is actually calling for or have been "grandfathered in"...
Twitter exchange between Janet Dafoe @JanetDafoe and ME/CFS News @MECFSNews [IMG] [IMG] [IMG] There are now around 87 comments...
@bobbler wrote: It remains unclear to me whether Chesley is seeking to achieve a) or b), or something else: a) to crowdsource a single medical...
Thanks for the link, Sly Saint.
Janet Davoe has said on Twitter that she and Ron believe it is too early to do this [the One Name Campaign].
Thank you, Trish. I hope you receive a response. This would have been an ideal space for the Director of this project to have gained feedback in...
I despair of #MEAction. They style themselves as a "grass roots" organisation but we witness them blithely supporting proposals for multiple...
How, though? While OMF, SOLVE M.E. and #MEAction are backing it, for some, that will add a veneer of legitimacy.
There's another site page that is listed on Google, with a Contact box and field for name suggestions, which doesn't appear to display for me when...
Chesley Heymsfield (Campaign & Documentary Director) has a Twitter account for the One Name Campaign, created in April 2023, but no announcement...
It's unconfirmed, but I suspect that the three supporting orgs were approached, initially, for their support and promotion of the film about ME...
Oh, and none of the presenters (of a project that presumes to represent those with Long Covid and other vulnerable patients) were wearing masks at...
Finally had time, last night, to listen to most of the YouTube One Name Campaign launch video. I don't think this "horse with no name" has a leg...
https://keyt.com/news/santa-barbara-s-county/2023/06/12/931046/ "....[Director Chesley Heymsfield] believes long haul or long COVID and illnesses...
Facebook page for...
Separate names with a comma.
