I keep thinking of this cartoon, 'You Get What You Measure' - especially re bobbler's question "Is this going to be another accessibility barrier...
An opinion piece in the BMJ by Trisha Greenhalgh, Martin McKee and a few others: https://www.bmj.com/content/386/bmj.q1983 “… a range of...
especially as the 'snapshot' doesn't seem to have any way of distinguishing between a symptom that isn't currently causing problems because you're...
plus of course 'people with LC who use fitness trackers and respond to healthcare surveys' is only a subset of people with LC.
I wonder if that's people at the 6-month stage still trying to be 'normal', so they keep overexerting and crashing and lying flat out and switched...
It's the accompanying letter that says: here's your £10, and if the DWP has accidentally overpaid you then you'll be subject to legal proceedings...
It's a good point that just 'discovering' something isn't enough to make it known, there are all the other steps of having it recognised and...
like Type 1 and Type 2 diabetes maybe?
The pandemic experience was very different for different people.
or they'd just use a pair of colours that aren't confused in colour blindness? Last time I did a Stroop test it was red and blue.
Something that seems to happen a lot in ME research is that the patient group shows much more variance than the healthy controls (as in the red...
I think those unimpressive numbers probably say more about the success or otherwise of the c.40 sessions of treatment (which the patients were...
The neurologist who tried to pin FND on me made a similar distinction - he was happy to agree that I'd initially had Long Covid, i.e. some...
ho hum
hmmm
Lots of posts and comments about this video on Mastodon from people who aren't the regular LongCovid hashtag crowd. Seems to be cutting through.
The enormous difference it can make when someone sees you as a person rather than a case.
Funny how knowledge about long COVID is the first thing patients expect, but has disappeared from the list once we get to the recommendations for...
They defined 'post-Covid conditions' as 'COVID–19–related symptoms lasting 4 weeks or longer', which will apply to so many people that you can...
Separate names with a comma.
