https://mastodon.social/@_slotek_/112847835155852556
To save anyone time if you were thinking of going to read the paper: it's just as weak and dishonestly slanted as you might be imagining.
Seen on social media, not an ME case but relevant to eating difficulties being treated as a mental problem not physical:...
It's interesting to see journalists being unafraid to present the psychological view of ME as a causal factor in the failings of care. I wonder...
There's a group called Not Fine in School for parents of children experiencing exclusion from education for a range of reasons, including health...
Postscript: sometimes the amazing improvements reported in case studies of toddlers turn out to be mainly that they got a couple of years older...
My perspective on this is that I'm autistic and I have an autistic child who would fit the 'severe' categorisation (at a specialist school, may...
PIP consultation closes at the end of today. It's a stupidly long form that you can't save - but there's no requirement to answer all the...
I found it hard to navigate - it's cluttered and visually overwhelming with a lot of irrelevant pictures and repetitions. Might be more useful for...
So either that's an unusual cohort at the outset or their definition of LC is meaninglessly broad.
I'll speak up for my local LC clinic, which hasn't tried any GET/CBT nonsense on me at all. But yes, 'get the help they need' is the wishfullest...
Thanks for transcribing all this, Dakota15. Fascinating and frustrating.
They're working on the assumption that there's a 'virtuous circle' in which brain fog goes away as long as you just work harder on your 'skills',...
Tiny numbers (7 in the treatment group, of whom one didn't adhere to the treatment; 9 in the control group, of whom 5 dropped out at various...
My husband is gluten sensitive and his experience is very much like yours, including not knowing that the test wouldn't be valid if he was...
Not terribly well controlled then, if some of the participants were completely off gluten at the time of the trial and some weren't?
Not a fan of "dark" being used to denote "bad". If her work stands up to scrutiny then she ought to be able to find a scientifically descriptive...
Part of the Lightning Process is that patients are told that in order to get better, they have to tell their 'recovery story'? i.e. they have to...
In the cohort description it says "Individuals recruited were symptomatic COVID-19 patients aged 18 or older, who had at least one risk factor for...
Needing intervention for homicidal thoughts and needing a chat and a hug after a breakup are just not in the same category of therapy, however...
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