If my maths is right, less than 5% of the people invited to participate returned an intake questionnaire - and presumably not all of those will...
happy unhappiness upward downwardness daytime night-timeness words, what even are they?
also when you're typing on here it's a communication with people who broadly get where you're coming from, whereas if you're writing a letter to...
It's good to see increasing numbers of studies looking at PEM. I'd love to see some research on what happens *before* PEM, what chemical state the...
Paul Garner is a signatory to one of the letters responding to the article about Toby here...
No idea if this is relevant or any good, but someone I follow on Mastodon just posted a link to this with the comment that it's good to see a...
Rifle shooting? Especially the category where you can lie down?
(Not really sure where to post this, sorry if it's off topic) I was half-listening to the BBC 6 Music breakfast show as usual today. Someone...
or maybe she's just getting better.
This. All the well-meaning friends and relatives saying "But that person on that TV show said it made them feel so much better! Are you sure you...
Unserious Science The first section of this article by Adam Mastroianni made me think of quite a few studies that show up in the psychosomatic...
Also https://www.ipsea.org.uk/ is a great source of advice on statutory rights for young people with medical issues.
Ah, makes sense. Sad.
who wants to tell them?
Thinking about this a bit more: the consequences of doing an activity are the direct result of how ill you are. Your decisions on how to adapt...
What I find deeply confusing about the MEAQ is that it has so many overlaps. 'Adaptations' are factored into some of the activities listed, but...
"Lucy’s GP diagnosed her with long Covid and referred her to a specialist clinic. The help she got was limited. “Every medic I saw did their best,...
and if you're a parent researching the condition because your child is suffering with it, face having that used against you in an accusation of...
Seems extraordinary that a research group at one of the flagship research universities in the country is having to beg for £10 donations on the...
Separate names with a comma.
