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  1. MeSci
    Post

    Acupoint massage at Shenque (CV 8) for chronic fatigue syndrome: a randomized controlled trial 2023 Li et al

    "No intervention was delivered in the control group." Rather poor, I think. They could at least have provided something similar.
    Post by: MeSci, Jan 9, 2024 in forum: ME/CFS research
  2. MeSci
    Post

    Trial Report Advancing Therapeutics for Post-Viral ME/CFS and SFN in Long COVID: A 20- Week Sensomotoric Training Intervention, 2023, Ziaja et al

    SFN is apparently Small Fiber Neuropathy (from downloaded PDF of the study).
    Post by: MeSci, Jan 2, 2024 in forum: ME/CFS research
  3. MeSci
    Post

    Review Mitochondrial Dysfunction and Coenzyme Q10 Supplementation in Post-Viral Fatigue Syndrome: An Overview, 2024, Mantle et al.

    I tried Co-Q10 in or before 2014 and couldn't tolerate it. I said on Phoenix Rising: "I couldn't tolerate Co-Q10 even at 100 mg/day. My main...
    Post by: MeSci, Jan 2, 2024 in forum: ME/CFS research
  4. MeSci
    Post

    Why the Psychosomatic View on [ME/CFS] Is Inconsistent with Current Evidence and Harmful to Patients, 2023, Thoma et al

    Unfortunately the number of people studying psychology has increased dramatically: "Psychology is one of the most popular subjects to study at...
    Post by: MeSci, Jan 1, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  5. MeSci
    Post

    Post-Exercise Hypotension and Its Mechanisms Differ after Morning and Evening Exercise: A Randomized Crossover Study, 2015, Leandro de Brito

    I often feel relatively well for an hour or two in the morning, then gradually worse until about 1500, when I improve again. I seem to feel...
    Post by: MeSci, Dec 24, 2023 in forum: Orthostatic intolerance
  6. MeSci
    Post

    Roles for retrotransposon insertions in human disease- ME/CFS?

    I was wondering what RIP stood for, so clicked on the first link - it's "retrotransposon insertion polymorphism".
    Post by: MeSci, Dec 20, 2023 in forum: Possible causes and predisposing factor discussion
  7. MeSci
    Post

    Medical assistance in dying when natural death is not reasonably foreseeable, 2023, Wiebe and Kelly

    There was a programme last night on the same subject on BBC Radio 4: https://www.bbc.co.uk/sounds/play/m001t9km Euthanasia is illegal in the UK....
    Post by: MeSci, Dec 15, 2023 in forum: ME/CFS research
  8. MeSci
    Post

    Immunological Patient Stratification in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2023 Rohrhofer et al

    Is MBL mucosal barrier leakage?
    Post by: MeSci, Dec 6, 2023 in forum: ME/CFS research
  9. MeSci
    Post

    Catalytic Antibodies May Contribute to Demyelination in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, 2023, Jensen, Davis et al

    I also noticed that a contributor was Miranda Lee Dafoe - not sure of her relationship with Janet or Whitney.
    Post by: MeSci, Nov 28, 2023 in forum: ME/CFS research
  10. MeSci
    Post

    Does anyone use/have a parcel box for deliveries?

    I have a plastic waste bin with 'post' written on it (by myself - it has to be rewritten every so often!). It's like this one: [ATTACH] I have...
    Post by: MeSci, Nov 28, 2023 in forum: Home adaptations, mobility and personal care
  11. MeSci
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    $59,880 donated. 92% of total needed (still 2 days to go) https://crowdfund.berkeley.edu/project/40018
    Post by: MeSci, Nov 28, 2023 in forum: Fundraising
  12. MeSci
    Post

    New Study: Gargling with Salt Water May Help Prevent Covid Hospitalization

    I couldn't find, from a quick search of the paper, whether or not patients swallowed the saline. This could be important if in COVID, as in ME,...
    Post by: MeSci, Nov 21, 2023 in forum: Epidemics (including Covid-19, not Long Covid)
  13. MeSci
    Post

    Opinions on payments to participants in research

    I too voted "It depends" for the same reasons as others have given. I've just participated in a government-run at-home COVID study, which no...
    Post by: MeSci, Nov 20, 2023 in forum: Trial design including bias, placebo effect
  14. MeSci
    Post

    New relapse of ME after 15 years

    Do you have enough salt, @Woozy?
    Post by: MeSci, Nov 18, 2023 in forum: Neurological/cognitive/vision
  15. MeSci
    Post

    Crowdfunding: Trial By Error [David Tuller]: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms", Fall 2023

    $19,289, 29% of target 19 days left https://crowdfund.berkeley.edu/project/40018
    Post by: MeSci, Nov 11, 2023 in forum: Fundraising
  16. MeSci
    Post

    Bipolar disorder and ME/CFS

    Yes - that's what I meant, @Woozy, - sorry if it wasn't clear.
    Post by: MeSci, Oct 28, 2023 in forum: Neurological/cognitive/vision
  17. MeSci
    Post

    Bipolar disorder and ME/CFS

    Maybe you've been misdiagnosed? It's very common!
    Post by: MeSci, Oct 27, 2023 in forum: Neurological/cognitive/vision
  18. MeSci
    Post

    Closed UK: DecodeME updates, was recruitment thread.

    I've just noticed an error in the written report - it says "Females are more likely to experience...hyperthyroidism" whilst point 4 in the Initial...
    Post by: MeSci, Oct 20, 2023 in forum: Recruitment into current ME/CFS research studies
  19. MeSci
    Post

    Abnormal Glutamatergic and Serotonergic Connectivity in Visual Snow Syndrome and Migraine with Aura

    I'd never heard of Visual Snow Syndrome before. Once between the ages of 5 and 7 I experienced what I described as 'cotton wool' across my field...
    Post by: MeSci, Oct 20, 2023 in forum: 'Conditions related to ME/CFS' news and research
  20. MeSci
    Post

    Review The Utility of Methylphenidate for Fatigue in Long-Term Neurological Conditions: A Meta-analytical Review 2023 Hagan and Kumar

    Just did a quick search - methylphenidate is Ritalin.
    Post by: MeSci, Oct 19, 2023 in forum: Other health news and research
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