I've been victim to this at least twice - the first time after a muscle transplant from my leg, when I just knew that my leg hadn't yet healed...
Good grief - I wonder why I thought she was?
Yes - that was Caroline Lucas. As a Green I was very concerned about her involvement with them, especially as she is/was a GP! I emailed her a...
Yes - I'm much better in the late afternoon to early evening, often when the places I need to go are shut! It's very frustrating at times, e.g....
I don't think I can. If I'm really exhausted, I really struggle to get home, and if I were worse or if it were just a bit further I think I'd...
I suffered serious addiction to amphetamine in my 20s, so I suspect that any kind of amphetamine would have a similar effect. I certainly...
I don't think I get any ill effects from coffee/caffeine. I also didn't get any effects, other than slight irritability, from the three times I...
Apologies if this has been mentioned/discussed before, but I wonder whether amphetamines have any relevance here? I used to use amphetamines (I...
I thought that this was common in ME. I have had it for (almost) as long as I have had ME. I showed it to a GP early on in the illness, and he...
I wasn't sure what OCHOS was (brain fog as usual?) so looked it up on here - it's orthostatic cerebral hypoperfusion syndrome.
Yes, I had serious hyponatraemia (low blood sodium) for years, and took desmopressin for it, but had a hell of a job getting it and a hell of a...
Is that 2-3 of the B-complex vitamin?
Is that the Chew-Graham who has previously participated in ME research? Wasn't it rather rubbish? This looks OK from a quick glance.
Sorry that I haven't (yet) been able to answer the questions at the beginning of the thread. I wonder whether we need another term for delayed...
I decided to try l-glutamine again (used to use it every day) instead of sumac. I think I'd overdone things a few times recently and really felt...
"in the worst cases has left some people feeling that their illness is not recognised by the health and care system" Feeling? I think that is...
I think that there are a lot of supplements that mostly suit men rather than women (and quite possibly vice versa). I tried Co-Q10 years ago and...
Still taking 1 tsp sumac a day - don't think I should take more due to the possibility of hypoglycaemia. This morning my legs were much better...
I'm still taking 1 tsp of sumac a day, today starting at 1035 today. Earlier I experienced cloudy vision briefly - couldn't focus. Due to the...
I had a mild headache until about lunchtime so didn't take any sumac (1 tsp again) until 1310. ( I have had a mild headache a few times...
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