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  1. Utsikt
    Post

    Open Norway: Study of Daratumumab Injections for Patients with Moderate to Severe Chronic Fatigue Syndrome, 2025

    We all want a treatment as soon as possible, so I understand where you’re coming from. Fluge and Mella are nothing if not thorough. It is a hefty...
    Post by: Utsikt, Apr 17, 2025 in forum: Recruitment into current ME/CFS research studies
  2. Utsikt
    Post

    Open 2022 Pilot study in Norway - Daratumumab in ME/CFS

    Looks like it because it says that recruitment hasn’t started so it can’t be the pilot.
    Post by: Utsikt, Apr 17, 2025 in forum: Recruitment into current ME/CFS research studies
  3. Utsikt
    Post

    Open Norway: Study of Daratumumab Injections for Patients with Moderate to Severe Chronic Fatigue Syndrome, 2025

    They are using some objective outcomes in the current pilot and I assume they will do the same here, so blinding and placebo is not a complete...
    Post by: Utsikt, Apr 17, 2025 in forum: Recruitment into current ME/CFS research studies
  4. Utsikt
    Post

    Physical function and psychosocial outcomes after a 6-month self-paced aquatic exercise program for individuals with [ME/CFS], 2025, Broadbent+

    It’s easy to get good results when you ignore the control group.
    Post by: Utsikt, Apr 17, 2025 in forum: ME/CFS research
  5. Utsikt
    Post

    Hyperventilation during rest and exercise in orthostatic intolerance and Spiky-Leaky Syndrome, 2025, Amir Hashemizad et al

    Haha, yeah! ME moment :laugh:
    Post by: Utsikt, Apr 17, 2025 in forum: Other health news and research
  6. Utsikt
    Post

    [...] Understanding the Role of Peer Support Groups in Countering Epistemic Injustices in Long COVID at a US Centre, 2025, Sarma et al

    I found this via Wikipedia. https://compass.onlinelibrary.wiley.com/doi/10.1111/j.1751-9004.2010.00265.x Made me think of this comment that was...
    Post by: Utsikt, Apr 17, 2025 in forum: Long Covid research
  7. Utsikt
    Post

    Hyperventilation during rest and exercise in orthostatic intolerance and Spiky-Leaky Syndrome, 2025, Amir Hashemizad et al

    Why AI do you use?
    Post by: Utsikt, Apr 17, 2025 in forum: Other health news and research
  8. Utsikt
    Post

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    The current trend seems to be «the symptoms are real and they are caused by Neuroscienceᵀᵐ».
    Post by: Utsikt, Apr 17, 2025 in forum: Psychosomatic theories and treatments discussions
  9. Utsikt
    Post

    How does cognitive behaviour therapy reduce fatigue in patients with chronic fatigue syndrome? The role of physical activity, 2010, Wiborg, Knoop +

    I wonder if they even realise that sailing a ship from one predetermined port to another doesn’t create any new information at all? It’s such a...
    Post by: Utsikt, Apr 17, 2025 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Utsikt
    Post

    Hyperventilation during rest and exercise in orthostatic intolerance and Spiky-Leaky Syndrome, 2025, Amir Hashemizad et al

    The what now?
    Post by: Utsikt, Apr 17, 2025 in forum: Other health news and research
  11. Utsikt
    Post

    How does cognitive behaviour therapy reduce fatigue in patients with chronic fatigue syndrome? The role of physical activity, 2010, Wiborg, Knoop +

    I’ve actually seen that quite often. The aim is to prove the efficacy, not test it. They might believe those are the same thing, for all I know.
    Post by: Utsikt, Apr 17, 2025 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Utsikt
    Post

    Mixed methods study of views and experience of non-hospitalised individuals with long COVID of using pacing interventions, 2024, McMullan et al

    These are the concerns about pacing by the participants. If they had bothered to talk to someone with ME/CFS first, they would have gotten the...
    Post by: Utsikt, Apr 17, 2025 in forum: Long Covid research
  13. Utsikt
    Post

    Mixed methods study of views and experience of non-hospitalised individuals with long COVID of using pacing interventions, 2024, McMullan et al

    I have skimmed the first sections, and I’m not confident that the authors actually know what pacing is, its context with regards to ME/CFS, what...
    Post by: Utsikt, Apr 17, 2025 in forum: Long Covid research
  14. Utsikt
    Post

    Mixed methods study of views and experience of non-hospitalised individuals with long COVID of using pacing interventions, 2024, McMullan et al

    No mention of PEM.
    Post by: Utsikt, Apr 17, 2025 in forum: Long Covid research
  15. Utsikt
    Post

    Brain Retraining treatment for ME/CFS and Long COVID - discussion thread

    That’s terrible, I’m sorry he had to go through that. Did the influencer go back on her claims or take any responsibility?
    Post by: Utsikt, Apr 17, 2025 in forum: Psychosomatic theories and treatments discussions
  16. Utsikt
    Post

    Linking Genome-Wide Association Studies to Pharmacological Treatments for Psychiatric Disorders Arnatkeviciute 2025

    I wonder how this would look for treatments for ‘somatic’ issues. If they have a much higher correspondence, it could indicate that the current...
    Post by: Utsikt, Apr 17, 2025 in forum: Other health news and research
  17. Utsikt
    Post

    BBC: Plan for GPs to keep millions out of hospital

    I like my earwax - it’s a much welcome natural soundproofing. But I didn’t like it before I got sick!
    Post by: Utsikt, Apr 17, 2025 in forum: Other health news and research
  18. Utsikt
    Post

    The Relationship Between Depressive Symptoms and Functional Gastrointestinal Disorders (FGIDs): The Chain Mediating Effect of... 2025 Sun et al

    I understand what you’re saying here and I know this is a pedantic comment, but I don’t think there is any reason to even accept the label of FGID...
    Post by: Utsikt, Apr 17, 2025 in forum: Other psychosomatic news and research
  19. Utsikt
    Post

    Preprint Dissecting the genetic complexity of myalgic encephalomyelitis/chronic fatigue syndrome via deep learning-powered genome analysis, 2025, Zhang+

    Same!
    Post by: Utsikt, Apr 17, 2025 in forum: ME/CFS research
  20. Utsikt
    Post

    Trial Report Ten sessions of hyperbaric oxygen versus sham treatment in patients with long covid HOT-LoCO…, 2025, Kjellberg et al.

    I have not followed them closely, but the general impression in Norways is positive. They got up and running very soon into the pandemic and I...
    Post by: Utsikt, Apr 17, 2025 in forum: Long Covid research
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