Putting all of the issues with the psychological concepts they describe aside: I wonder when Chalder is going to learn the difference between...
The purpose of this thread is to identify and rename words, phrases, etc. that are used to describe aspects of living with ME/CFS that are...
@CRG you’ve reminded me of one of my experiences. In the first 2 years of post-covid-ME/CFS I really struggled to use my muscles. I used to...
Does this mean that they already had samples of ME/CFS patients? Do we know how they collected them and how diagnosis was confirmed?
Thank you! I came across it in SoMe, OMF has written about it: https://www.omf.ngo/tryptophan-melatonin-metabolites/ We’re pleased to share a new...
@poetinsf we’re going in circles here. I believe your suggested approach is about the most inefficient way of solving a problem that we barely...
Do you even have to measure the economic impact to argue for grants? Could it be sufficient to just say that the DALY is high, so we should...
Are they saying that more than 1/3 did not experience symptoms after 90 days? It seems like it: [IMG] [IMG]
[IMG]
71 % self-reported adherence is quite bad.
That’s what I assumed, but it’s always good to ask when English is my second language. Thanks!
Bedridden. I can use the toilet on my own and eat. Walk 50-100 meters a day at most. My parents do everything for me. M29.
I’ve had unexplainable flares while I’m still in PEM and complete bedrest except for toileting. E.g. back up to 8/10 on an arbitrary symptom scale...
No it did not always as far as I can tell. Although I would probably not use the word trivial, very small amounts of exertion is probably a more...
I struggle so much with getting this point across to the people around me. And its made even worse because I can’t explain why it works...
By ‘worry’, do you mean that it’s a challenging issue to solve or that it’s wrong to include trivial exertion as a cause of PEM?
What’s that?
It says ‘will you give us a hand?’. That’s cool! Lund and Lunde are common Norwegian surnames.
For me it does. There are drastic differences between my strength on a good day and bad day. On bad days I struggle with lifting a glass. On good...
Me too!
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