The design can’t assess effectiveness at all. ME-pedia on the CIS-scale: It does not seem like it’s a good scale.
How does cherry picking like this get past peer review?
My parents just got a new external one downstairs and while it’s not noisy, it’s not something I could have in the rooms I spend my time in.
That’s a very important consideration, @Trish The cost of exercising with PEM extends far beyond the symptoms you might get. And if there is no...
I wonder how reliable it would be because surely there have to be plenty of other factors that affect HRV?
The absolute size of the subset doesn’t matter. It’s the ratio of the population that matter. And we know pretty much nothing about that.
@swfrances I don’t think the creator of the thread has any ties to this project. But you might be able to reach out to them through these links?...
I got ME/CFS from covid. I know many others that experienced the same. But I know far more patients that did not get ME/CFS. So covid can cause...
It’s even worse. They didn’t acknowledge the content at all. Even the automated messages from email support contains more info than this reply....
A lot of the planning and reasoning has to be done before any of the grants come into play. And we know small pilots can get funding through...
A counter point is that we very recently had a researcher from another field join us here on the forum, and he’s already planning talks with other...
I’m just replying to elaborate on why I’m optimistic on this specific point. SequenceME seems to be able to get funding and partners, and...
I think multiple things can be true at the same time: Ideally, we need more very good researchers in the field of ME/CFS. The lack of funding for...
It’s good that things like this is called out. And not very good that it wasn’t caught prior to publication of the first piece. A good reminder...
Yup!
I have not checked the quality of the studies, but based on the descriptions they are not suitable for determining the prevalence of ME/CFS in LC...
This is what happened in Norway when we asked for a national competency service. Actually, it was worse because they actively work to undermine...
Studies on self-selecting participants or patients at specialist clinics can’t be used to estimate the prevalence of anything. I don’t understand...
Maybe try something like «always pronounce the individual letters of words that are written with only capital letters?»
Thank you for sharing!
Separate names with a comma.
