It's probably more personal than cultural. There are plenty of people upset about psychologization over here too and Americans are no less...
Thank you for the long explanation and the link, Trish. We obviously have different experience and perspective. But I'm sure we are all looking...
Not sure about that one. It could be used as an opportunity to screen hypotheses. If they are testing, say, if fatigue is functional, it could...
Sure, I'd agree. What about collecting psychological data to test the hypothesis that the fatigue is functional, for example. I'd think it'll be...
That wouldn't prevent another Walitt paper though. It wasn't about hypothesis testing; it was about phenotyping. Would you ban the use EEfRT test...
Because whatever the shoddy practice that the charter is trying to prevent is not specific to ME/CFS? In any case, I'm still hearing different...
So, should all patient groups now have Charter for the researchers? Whatever is going on in the scientific community can't be unique to ME/CFS....
That may be what it is from inside, but from outside it may look indistinguishable: it's a political action by patients who feel victimized by the...
XMRV probably was an extreme example since it happened (not the paper, but the political action in the wake of it) in an atmosphere of "nothing...
I don't have an article or summary for XMRV debacle, but google search would turn up articles like this: Science Journal Retracts Chronic Fatigue...
Sure, I can agree with that. And I could add quite a few more names to your list.
Do you really want to see patients pick and choose which studies get funded? That might be democratic, but democracy is not the best tool to solve...
Are we simply talking about communication? Requiring patient involvement in design, management and publication seems a bit more than that. Good...
If they are funding with their own money, sure. I meant "voted" or "directed" by "funding". Calling the XMRV fiasco just a poor lab science is...
Non-sequitur. We are not talking about subjects' informed consent to already designed studies here. We are talking about patient groups getting...
To me, it's akin to free speech. People don't like certain speech, so they start censoring. Sooner or later, free flow of idea, and progress along...
No it wasn't. But patients rose up in arms in support of it because they favored viral theories. If they had choice from the beginning, they...
No argument there. But you never know what will happen once you leave the barn door open (or close the door in this case?) As much as we'd like to...
Or, for something that meets certain other criteria? As good intentioned it may be, you never know for sure which way the ball will bounce once...
OK, it is the psychosomatic theory that patients are against today. What would it be tomorrow? As much as we think we are rational, unimaginable...
Separate names with a comma.
