I'm not familiar with DecodeME, but I suppose it was designed to be collaborative? The proposed statement is not specific to a project, but a...
Requiring the patients' involvement in design, management of the study, or approval of patient organization, could exert enough pressure on the...
Again, I, or anybody else, have problem with advocating. It's the directing/dictating the research that will prove to be counterproductive. I...
I suppose anybody can suggest guidelines as long as researchers are free to heed or not heed. And a non-political guidelines might be a good idea....
I'm with you on that one.
Yeah I can see where you guys are coming from. I've been sick only for 15 (and recovered), and I haven't been subjected to abuse by the medical...
I have no problem with advocacy. I don't think anybody does. But it gets problematic if we start to demand/dictate what to research and how, or...
We are getting into the domain of politics when we talk about power and control. Not sure if that is compatible with science. I would think it's...
What hypothesis lead them to adjust for CRP? Seems like an afterthought rather than an ex-ante design.
Freedom! That's what it represents. I can see an eBike making it a lot easier. On a regular bike, stop/starts take a lot out of you even if you...
That just goes to show how human mind works. It can't deal with uncertainties and unknowns, so it has to see patterns in everything, even where...
A few of the putative mechanisms could've been eliminated rather quickly if they considered non-viral MECFS cases, or some intracranial...
It probably has to do with social distancing imposed by MECFS. You definitely stay home much more than you used to if you have MECFS. I used to...
100 is pretty big for an observational pilot study. They could've gone for an RCT with that kind of number. Rapamycin, btw, is also known for...
This is a 9-year old paper on hand grip test in which "The participants were strongly encouraged by the experimenter to exercise to complete...
Evidence for Sensitized Fatigue Pathways in Patients with Chronic Fatigue Syndrome Roland Staud,1 Meriem Mokthech,1 Donald D. Price,2 and Michael...
While on the ski slope yesterday, I was thinking about the finding that the catechol level correlating the symptom severity. Even though there is...
Oh, wait, I think that question is already answered with 2-day CPET test. VO2 Max of PEM patients drops significantly while that of sedentary...
I think the point was that you are not supposed to be able to achieve the peak exchange rate, with or without the encouragement if you have...
The more I think about it, the more problematic it becomes that they speculated "conscious or unconscious pacing" as the cause of the effort...
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