What would they have to do to do it properly? I think there was a thread about something like "what research would you do if money was no...
Do we know for sure that BPS, GET or brain retraining doesn't work for everybody? There could be one or two out there with anecdotes. Their...
So, will it still produce 200 unnecessary deaths if we make available drugs that's been proven safe enough in general? That certainly will be an...
If X works for those 5 people, why take X off the table for all? One obvious reason is the cost. But if you have an objective way (time spent...
Well, let's just say we disagree on that. Despite of lack of fund on the scale of cancer or AIDS, there still have been plenty of poking around...
I'm not sure about that. Stat says that about 25% are severely ill and they are more likely the group that nothing works. Some in the rest have...
So it comes down to money. I'm sure there are patients who tried everything and nothing worked. But there are also who tried everything and found...
Yep, I think we agree that we disagree. To me ME/CFS is like trying to find a sunken ship in open ocean. We have no idea where it is, and no...
True. I don't think anybody is saying that we should stop basic research. But the "basic research" is not the only way to solve the problem or do...
Passive observations and RCT are not the only way to do the science. You can figure out by effectuating the change, learn how the system behaves...
How about things that current crop of hypotheses predicts or implicates? Then move on to ones that accumulated anecdotes. In the absence of any...
You could though, if you can go through 13 million books somehow. Search engines do that for us these days. Tomorrow, it could be a pharma AI that...
You could try the likely ones first and then move down the list. In the absence of other indicators, accumulation of anecdotes is one way to...
I think the main difference between you and I on this topic is that I'm way more pessimistic about the "basic science". Normally, things tend to...
You figure it out by trying it? It ain't no use to sit and wonder why the roof is leaking. Somebody should jump on the roof and start poking...
And that's what you would do if you had an opaque gadget you don't know anything about. You kick it around, see how it responds, and try some...
Here is one. I thought there was a large European study, but I don't seem to be able to find it. Glucosamine, Chondroitin Sulfate, and the Two in...
If we sat on the scientific plausibility, bloodletting or geocentric theory is precisely the kind of things we would end up with. We have things...
Those are possibilities too. We should let a trial, like the one for glucosamine for cartilage, settle the question rather than dismissing them...
Why dismiss them out of hand? If many people report blood-letting or homeopathy improving their condition, then we should do a trial.
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