This is very true. Even medical grade devices may not be precise enough for ME/CFS which is highly sensitive to even small amount of exertion....
That is an easy problem to solve. You just define your activity to include reading/listening/talking. That said, don't you end up spending more...
Whenever you talk about whether something is true, it can quickly devolve into metaphysics. In science though, only what predicts, not explains,...
Call it whatever you want, fatigue or sickness, we are talking about the same thing: whatever it is that is preventing you from doing what you...
True. But fatigue is the most common symptom and could serve as the proxy for the severity of PEM. Could other symptoms be disproportional to...
If you want to measure the severity of PEM or study the correlation between the exertion and the resulting PEM fatigue, you do need something more...
Only if you equate symptoms to feelings. I looked at VAS, and it is no different that the 1-9 scale I've been using. It still suffered from...
I'd agree with that. From my own experience in recovery, I could testify that deconditioning in PWME is at another level. If the degree of...
Can you elaborate on that? If you are talking about fatigue surveys asking feelings, we have different opinions. Feelings suffer from sensation...
Measuring (the severity of PEM) should be quite simple: just measure your symptoms, not causes, post-exertion and then compare it with...
If you meant feelings by "at rest", I'll have to say, at the risk of being repetitive, feelings aren't something we can measure. Fatigue, or...
I don't understand the question. What is PEM other than the response to the "challenge" of exertion? 2-day CPET only measures VO2MAX the day...
And what point that might be?
I don't know why they have to make it so complicated. PASC is anything and everything left over from COVID infection, of which ME/CFS is one. So,...
There is no doubt we have female bias in ME/CFS. So, this work might have an implication. But then, they also admit: In any case, I'd agree this...
The paper is not saying anything contrary as far as I can see. But it is showing the underlying mechanism for it by replicating the Xist action in...
A reminiscence of Montoya's Valtrex trial umpteen years ago that showed stunning result in a proof-of-concept trial, only to quietly disappear...
Maybe this will put an end to gaslighting the female patients. Then again, it may not. Sounds much like MECFS. I wonder if there is a...
Sick people have difficulty generating energy, duh. I don't understand why they keep comparing with HC when they should compare it with similarly...
I'd prefer to stick with post-exertional malaise. As soon as you call it whatever-intolerance, MECFS will get conflated with other fatigue...
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