That is pretty much exactly what I experience @hotblack Just that since I became very severe, it now seems to always coincide with allergic...
This is such a correlation / causation mixup. Once the symptoms have stabilised and there’s a reduction in post-exertional malaise, that means...
The system may be abstracted as an empathyless cold and metallic thing. But the system is the sum of the people inside it. So that just speaks to...
I think we are taught to implicitly trust institutions our whole life, especially those that have the guise of “science” and “government”. I am...
Likely it would be handed to a committee including both patients and researchers who will vote on whether to fund applications or not. My dream...
Totally spitballing but could this by why people often report weirdness around dreams. “ie. vivid dreams, constantly wake up after dreaming, fever...
Is there a reason you don’t include “My overall sleep duration is longer” “My overall sleep duration is shorter” “My overall sleep duration is...
Does anyone else desperately wish these studies were on specific subtypes ie. POTS, Post-ICU syndrome, ME etc. I feel like we have so much useful...
To me it really feels like any sort of effort past a threshold whatever the nature of that effort is gives me PEM. This even counts for effort...
Yes it really felt like they were trying very hard to find something to insert scepticism to our side of the story. Hence, that comment and others.
The article seems to have a sceptical tone of pwME in it. But the fact they got quotes from Jonathan and Hilda (when she’s on our side) and no...
I’m having a real hard time these past couple weeks. It feels like the world’s going back to an attitude on disability rights from the past...
@Sasha I just realised my comment is completely irrelevant to your post, you asked about why some viruses take months to recover from in general,...
I did that but then had irritation problems so I have a very scheduled elaborate system of earplugs while I sleep and industrial grade earmuffs...
Treatments for cardiovascular problems I assume.
Yeah this will include loads of “idiopathic chronic fatigue” cases
I can’t tell if “lack of adherence to medical treatments” refers to the fact we have worse access to healthcare, or the bigoted “you don’t want to...
This doesn’t include activity levels.
People with ME/CFS meeting the IOM criteria (50% reducing in functioning) had too mild symptoms to qualify for a long COVID diagnosis. That seems...
If it’s the “Chronic Fatigue” clinic at Zürich university it is unfortunately “holistic” code word for psychobehavioural.
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