I know this is a symptom experienced by a proportion but it seems weird tho put it as the first symptom. I doubt it affects everyone with ME and...
But isn’t the “syndrome” defined by the symptoms? And anyways, a lot of people decline in ability - ie. severity when in PEM, so “get worse” makes...
Yeah you’re getting it right, they seem to have found that the “female” variable induced a 24% difference in severity. (Assuming that’s an...
Yes. Among BPS doctors there’s the belief that interacting with others with your illness will actually make you worse, they likely pass that...
I guess when you’re making a career out of publishing about a syndrome and claiming you can treat it, it’s inconvenient to say the cause is...
They find what they are looking for, its a self fulfilling prophecy.
Abstract: Approximately 10% of patients experience persistent symptoms following COVID-19, known as long-COVID syndrome. This cross-sectional...
I kind of get this study. But it kind of feels like they are saying a band aid treats a wound. The large majority of people in online communities...
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I’m aware this very likely isn’t feasible for a large multitude of reasons, but I feel like S4ME would be uniquely qualified and good at...
Yet they still treat long COVID patients like sh*t. Old beliefs die hard, doubly so if it has an in-group vs out-group dynamic. The colleagues...
Probably best not to. I can imagine this sort of person getting all sucked up into lightning process type stuff.
To be fair paed has the same root as ped in pedophile, which comes from ancient greek “paid” meaning children. But yeah it’s kind of baffling...
Yes it’s full of falsehoods. It’s as if they made up a definition of ME/CFS to match their theory, but that definition reads nothing like how...
Certainly doesn’t work in french, but to be fair translating the underlying words gives EMPE. I’m not aware of what PEDE could mean in english?...
The OMF in my view has been the most successful at creating an online presence and establishing itself as the charity of choice for pwME to donate...
@Sly Saint I think the “January 2024” in the title is a typo. I assume 2025 was meant.
I think this one is especially important.
Maybe part of the story, but for the vast majority of ME patients who aren’t “activists” or very “informed”, they don’t see ME the same way we do....
I know this isn’t a massive sample size but it’s refreshingly large compared to the 5-10 patients in most studies. Interesting hypothesis. Sounds...
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