I unfortunately can't really do videos more than 5 mins long and need subtitles so I can't watch or attend these sorts of things but was just...
@Kalliope did you attend? If so what did you think?
Seems to be a common problem, not sure many psychiatrists these days have internalised that most the illnesses they diagnose are made up labels...
Yep when you look at how studies like PACE were conducted. It’s glaringly obvious that PACE was an attempt to produce “evidence” that GET/CBT...
Cf. The few bps papers we have managed to get a correction on the outright lies/manipulation
Quite a few other long COVID adjacent papers in the top 25. Almost as if, you know, long COVID is common and people have to read papers for...
Especially worrying given this survey was created by a Long COVID charity that should surely be aware most pwME can’t work.
Maybe I’m misinterpreting but I think funcap does this well. Although it’s more about what you think you can do / consequences for doing...
I actually ended up doing my first year of uni abroad in vienna, because they offered a lighter courseload and I was already feeling too ill for...
(I wish switzerland were as pragmatic as other western countries on this. But really Education is seen as either something full time or not at...
Probably worth mentioning that to them in an email reply. Also, Hi! Welcome to S4ME :)
Except they’ve classified those issues into a made up category which implies the issues are psychsomatic.
Maybe it’s a way for their paper to get more attention/be more memorable. Which seems to be a priority of researchers for some reason.
I’ve heard of stories where people pushed themselves to do it and ended up having permanent worsenings of the illness… (which they attributed to...
Thanks :hug:
Urgh. That’s the same hospital they have the only “CFS” clinic in the country which is psychosomatic as well. Their “chronic fatigue” page tells...
Isn’t that beside the point though. A single outcome (both subjective and objective) has confounders that don’t tell us much. The point is to...
I think the biggest impact by far would be patients and their family (especially the kind that seem to believe, if it’s published in a prestigious...
I’d call 50% reduction in functioning something that could be objectively measured.
The closest thing I know of would be: How to prove that your therapy is effective, even when it is not: a guideline, 2015, Cristea & Cuijpers
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