This is really interesting phrasing for PEM, and I have to say, as a severe person, it encompasses my experience far better than “PEM”.
I’m actually really surprised no causal links were found, between lots of pwME being misdiagnosed with MDD as opposed to ME and lots of people...
TLDR is they aren't denying her accusations but say that the accusations don't amount to misconduct.
So nothing? (I know I'm being pedantic and they probably mean "management")
To be fair a lot of people with FSS are initially misdiagnosed with stress related syndromes (like burnout), so it’s no surprise the groups are...
How I wish people realised this.
Very very much agree.
That’s the referall hash. I couldn’t find the study I had previously read last week on duckduckgo so asked an AI bot to search and find it for me...
I wonder if the Sick Times would be willing to do a piece. I know they aren't an "outside the community" type of source, but I think a sympathetic...
Abstract Histamine intolerance, also referred to as enteral histaminosis or sensitivity to dietary histamine, is a disorder associated with an...
I think it’s a slippery slope saying oh but what about the people who kind of fit the definition but not really and continuing to expand the...
How do I “super like” this comment ahha. Thank you for writing it, really appreciate the read.
Agreed. It would be really cool if volunteers who wanted to could be allowed to translate these resources to various languages. (On an as wanted...
Thanks I copypasted it back into the original post
Yes but they are only UK.
Something for very severe ME is really important. Most resources produced by charities just don’t apply for us. They assume you have some...
Fantastic read. It really makes me wonder if the near entirety of psychological “treatment” is expectation bias pseudoscience.
The journalistic reflex of “dumbing down” is really hurting pwME. ME/CFS -> Chronic Fatigue Syndrome -> Chronic Fatigue PEM -> post exertion fatigue
I love the idea of the thought experiment @EndME But I’m not sure there is any evidence (even a biomarker)*, that will change BPS people’s minds....
DWP spent £50,000 trying to stop release of review into disabled man’s death — The Guardian More than £50,000 of taxpayers’ money was spent on...
Separate names with a comma.
