I wouldn’t be surprised in a couple years if they would be recommending CBT for pain as a substitute for anesthesia.
Ok. How can you be sure of that? Didn’t you just say the cause is unknown? If it really is defined by a disturbance in perception, how can you...
I think this one can be influenced by diet. Ie. Bütler 2024
Yes. My illness which has literally left me bedridden and unable to speak would be better if I just ignored my diagnosis. Thanks Suzanne....
+1 on that front. They either have to stereotype us down as lethargic, depressed, constantly tired, the epitome of laziness. Or anxious,...
I had complained to them (Long COVID SOS) on Bluesky. This is the response I recieved: —- I reply about failing to include severe people, their...
Great blog. Will share to a couple support groups and friends. Just reporting a small error in link formatting: “the tragic death of Maeve...
I kind of like the microscope suggestion in that way. It sounds weird, but in a good way.
Interesting read. Thank you for sharing.
Just a note that this won’t apply to severe people as a question (atleast those of us who are horizontal 24/7). That’s not necessarily a problem,...
Me neither. I’ve never heard of the word before (english is my second language), but it doesn’t sound very good.
Isn’t “central sensitisation” in it’s broad sense a symptom of all sorts of neurological diseases. Ie. being more sensitive to stimuli. The CSI...
For what it’s worth I really have enjoyed reading your blogs.
Agreed. This is what I sent.
“The Baron(ess) of ME”
Oh thank god. I’m quite tired of every other long COVID study presenting it as a homogenous disease separate from everything else. Oh no. Back to...
Tangentially related but it really feels like the psychosomatic rehabilitation industry exists as an effect of a Foucaultian Diapositif, forming a...
I submitted a short comment because this felt quite close to me. My long COVID and ME did initially start out as a gastrointestinal presentation...
> I have an undiagnosed disease. > I have to miss loads of school because I need to go from doctor to doctor to get loads of tests because they...
I doubt anyone here disagrees with that. But the speculation is how it might be funded if only partial funding or even an outright rejection is...
Separate names with a comma.
