Similar thoughts. Everyone around me thought I would get back to normal within a year or two, because I was young, so it didn’t matter how much we...
Je trouve globalement superbe. J’ai que un ou deux petits commentaires. La liste à puces au début: “Elle touche environ 1 personne sur 250”… Je...
(Please remove this comment if it is fluff clogging up the thread, but I just want to say I’m very grateful this is happening) :)
Interesting experience. I wonder how different it would feel it I could feel both. We don’t have gas in our building, heating and stoves are...
Without one, Severe advocates are putting themselves at risk. It’s time for advocacy organizations to step up....
Do we have any update on this? If ethics was any concern the study would have been discontinued after @RaviHVJ ’s email. But I’m imagining it wasn’t?
Yeah I had to skim the paper. The section subheadings offer a pretty good summary: Self Tracking as a Curse Overwhelming and tiring work...
I think that’s what I’ve previously called it. But I’ve tracked a lot and it doesn’t seem to have any relation to eating or eating histamine rich...
I thought mostly the same. Until I had a period where I was so severe I lost 99.9% of communication ability or do anything but drink liquid food...
I tend to define it as PEM by how severe it is and how long it lasts, instead of whether it is instant or delayed.
I think the stress thing isn’t universal. I’m probably as stressed as I’ve ever been managing my energy so I have enough to eat and do the tasks...
I think the vast majority of people in these groups are lurkers who believe in the magic because the only ones they see talking are people who...
less chance of destroying your knees elbows or ankles. (As someone who was a bit reckless sports wise as a teenager and had to pay for it, and...
Yes, and the guests actually have to pay her to be on the show and sell their product. So the whole video is basically an advertisement....
I really feel weird when I see so many people celebrating studies like these on social media. I don’t wanna be a party pooper, but like it pains...
I think that’s what upholds the attitude. But I also think for a lot of people it’s less deep than that. Humans naturally seek meaning in...
This is exactly the kind of pseudoscientific stuff the founders of the psychosomatic movement pushed in the early 20th century (except with far...
A lot of pwME talk about a wired feeling, sometimes described as adrenaline rush, anxiety attack, fight or flight. It’s very possible that these...
“pacing” as defined by pretty much every doctor I’ve seen in french-speaking Switzerland who’d heard of the term meant “pacing up” to them. “Oui,...
In a lot of ways, they are part of the “hysteria” equivalent of our time.
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