I’ve started getting more and more this “poisoned feeling”. It seems to often coincide with PEM; and come up during sleep. And it’s just an...
DED, delayed exertional deterioration. Quite descrptive since it makes me feel DED.
I’m too foggy to understand anything but this looks interesting I think? Somewhat sceptical of the strong claims made here:
Wrong software, but I want to repost/retweet this. Because yes. 100%. Yes.
I don’t think we need to change Exertion in PEM. I just thing we need to be more explicit about mentioning passive exertion (ie. cognitive load,...
Cool thread idea. I question, are there any phrases that are wholly accurate and non-minimising. I think I’d have an easier time making a list of...
I think FUNCAP is about as nuanced as you can get, for measuring functional capacity in people with PEM. FUNCAP can pick up very small changes or...
Solve ME is matching donations double upto 10k today. https://bsky.app/profile/solveme.bsky.social/post/3lloyumb7v22t
I really think FUNCAP is a step in the right direction.
What do we mean by ME/CFS being real? A clinical category? A biological difference? How would ME/CFS being real fit into the possibility of there...
What I don’t understand, is that it looks like the probiotic group broadly had a stronger immune response, but also had less symptoms? Wouldn’t a...
Oh no, that’s GET. And later on in the article it attributes the improvement mostly to “willpower”.
I think this article is somewhat useful to show how media representation of the illness is not representative of the average experience of the...
Is it big that they found WASF3 as an implicated gene? Is that a sort of indirect replication of the findings by Hwang’s team?
For me it’s a part of PEM. After I overexert, it feels like my body sends some signals (perhaps adrenaline or something) to compensate. I feel...
My impression too. Outside of western anglophone countries and germanic and nordic countries. There seems to be extremely little awareness...
https://bsky.app/profile/daniellebeckman.bsky.social Danielle Beckman (Long COVID researcher): Our grant was not restored, but I am happy to see...
Having an ally in the senate really pays off. Wow. That’s a lot of money that would have been gone that we’ve got back.
I feel like they see it kind of like climate change. Where every country is like “Well it doesn’t matter what I do as much as it matters that...
Long click on the bit that says the time and date the post was posted. It should come up with a link you can copy. Took me a while to figure out.
Separate names with a comma.
