What is a "reasonable" size? The RituxME trial was the largest so far with 151 ME patients, and I believe this would not be a large enough cohort...
From my understanding and reading of the PR thread (which I'm actively part of), the info you bullet pointed are all from posts from a single...
WSJ - They Got Covid One Year Ago. They’re Still Sick.
I just remembered I had a full urine OAT test too, from Genova Diagnostics in 2014 (over a year into having ME). Almost everything normal range,...
From my understanding urine metabolite testing of neurotransmitter levels does not give a reliable or accurate indication of brain...
Without doing a spinal tap and microdialysis of neurotransmitter metabolite levels, how are they doing this? Likely more just talk and educated...
Yes, I believe I read too that doctors are not recommending quetiapine as a sleep aid anymore because of the fairly poor risk/benefit profile.
In my personal experience with ME, I find that the acceptance that ME is a real, debilitating, and physiological disorder from my family, work...
To add to this, I would say even though I still have ME insomnia and some sleep disturbances, before Abilify after a bad night I would wake up...
I also have very significant ME related insomnia and sleep issues. Abilify has helped with the sleep disturbances but not with getting me tired at...
Hi everyone - I’m at the 1 month mark since I went to Abilify 0.5 mg. Things are going really great, I feel even better than when I posted my...
I don't think anyone truly knows if there is any synergistic effect or not, without research pretty much impossible to know. Only thing known is...
Ditto to what @benji said. My ME doc (Levine) knows the Stanford protocol and paper well and we following the dose ranges described there. That...
To me this definition doesn’t make a lot of sense. So effectively any treatment that significantly reduces ME symptoms would be stimulating,...
How can I watch the entire episode from the US?
Glad you are feeling a bit better @jonathan_h, at least to have a respite. Reading your description I feel it’s very much like the changes I’ve...
I found an Abilify testimonial thread on PR dating back to 2012, and one member posted on the thread with her testimonial in 2017 where she...
Another reason I wanted to trial Abilify is because one of the few ways currently to get a clue about what subset I am, what pathophysiology I...
I would also put a caveat on anything found in research papers or on the web regarding antipsychotics, the issues generally described are for...
I am trying to figure out and stay at the lowest dose that works in order to minimize chance of potential side effects and to not get any possible...
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