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  1. leokitten
    Post

    Longitudinal Cytokine and Multi-Modal Health Data of an Extremely Severe ME/CFS Patient with HSD Reveals Insights... 2024 Jahanbani et al

    @Jonathan Edwards do you have any thoughts or useful insight into ITK as a target and possible ITK inhibition in ME/CFS? Like everything else to...
    Post by: leokitten, Apr 15, 2024 in forum: ME/CFS research
  2. leokitten
    Post

    Aripiprazole - Abilify

    Best of luck to you too. You should know in a couple weeks after starting whether it works or not
    Post by: leokitten, Apr 15, 2024 in forum: Drug and supplement treatments
  3. leokitten
    Post

    Aripiprazole - Abilify

    Hi everyone I have a significant update - with the new bottle of Abilify I still need to take 2 mg to have a good effect! So this comes as a bit...
    Post by: leokitten, Apr 12, 2024 in forum: Drug and supplement treatments
  4. leokitten
    Post

    Longitudinal Cytokine and Multi-Modal Health Data of an Extremely Severe ME/CFS Patient with HSD Reveals Insights... 2024 Jahanbani et al

    ITK inhibitors in inflammation and immune-mediated disorders, Sahu et al, 2009
    Post by: leokitten, Apr 11, 2024 in forum: ME/CFS research
  5. leokitten
    Post

    Longitudinal Cytokine and Multi-Modal Health Data of an Extremely Severe ME/CFS Patient with HSD Reveals Insights... 2024 Jahanbani et al

    What do people think about interleukin-2 inducible T-cell kinase (ITK) inhibition as a possible target for ME/CFS for an empirical drug response...
    Post by: leokitten, Apr 11, 2024 in forum: ME/CFS research
  6. leokitten
    Thread

    Tissue-specific enhancer–gene maps from multimodal single-cell data identify causal disease alleles, 2024, Sakaue et al

    https://www.nature.com/articles/s41588-024-01682-1 Translating genome-wide association study (GWAS) loci into causal variants and genes requires...
    Thread by: leokitten, Apr 9, 2024, 0 replies, in forum: Other health news and research
  7. leokitten
    Post

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    And the NIH ugh always getting things wrong their recent study saying no evidence of brain injury?!?!? Not listening to patients
    Post by: leokitten, Apr 1, 2024 in forum: Other health news and research
  8. leokitten
    Post

    Aripiprazole - Abilify

    This time around I am not going to take it for months, because while I have no idea if it’s covering up symptoms or actually providing symptom...
    Post by: leokitten, Mar 30, 2024 in forum: Drug and supplement treatments
  9. leokitten
    Post

    Aripiprazole - Abilify

    I started a third cycle of low dose Abilify March 10th. It’s worked again for me. For those not familiar I did the first trial in 2021 then took a...
    Post by: leokitten, Mar 30, 2024 in forum: Drug and supplement treatments
  10. leokitten
    Post

    Nature: ‘It’s all gone’: CAR-T therapy forces autoimmune diseases into remission

    May I ask, why isn’t it also possible like they said in a few of the articles on this that monoclonal antibodies like rituximab just aren’t...
    Post by: leokitten, Feb 28, 2024 in forum: Other health news and research
  11. leokitten
    Post

    Differential peripheral immune signatures elicited by vegan versus ketogenic diets in humans 2024 Link et al

    I’m telling you my experience with keto and how it temporarily yet dramatically improved my ME symptoms wasn’t “in my head” or a fluke. It didn’t...
    Post by: leokitten, Jan 30, 2024 in forum: Other health news and research
  12. leokitten
    Post

    Brain FADE syndrome: the final common pathway of chronic inflammation in neurological disease, 2024, Khalid A. Hanafy

    I don’t know how far the evidence base has gotten on this, but CRP could be a potential biomarker of depression severity and worse treatment...
    Post by: leokitten, Jan 20, 2024 in forum: Long Covid research
  13. leokitten
    Post

    Trial Report Successful treatment of myalgic encephalomyelitis/chronic fatigue syndrome using hydrogen gas: four case reports, 2023, Hirano

    What we all really need is some laughing gas
    Post by: leokitten, Nov 6, 2023 in forum: ME/CFS research
  14. leokitten
    Post

    USA: “Movie About M.E." and "Banner for Awareness" (formerly "One Name Campaign")

    Did this documentary ever get made?
    Post by: leokitten, Oct 25, 2023 in forum: General ME/CFS news
  15. leokitten
    Post

    If you had to guess ME/CFS cause, what'd you say?

    Immune system dysregulatiom triggered by viral infection. Caused chronic immune overactivation for many months that set in motion a cascade of...
    Post by: leokitten, Oct 19, 2023 in forum: Possible causes and predisposing factor discussion
  16. leokitten
    Post

    Serotonin reduction in post-acute sequelae of viral infection, 2023, Wong, Cherry et al

    Just a thought, why then did that DBRCT of ivermectin or metformin or fluvoxamine in LC show only metformin had a beneficial effect? Fluvoxamine...
    Post by: leokitten, Oct 17, 2023 in forum: Long Covid research
  17. leokitten
    Post

    Efficacy of daratumumab in refractory primary Sjögren disease Nocturne 2023

    I don’t know how common it is in pwME, but I’ve had multiple positive 1:160 or 1:320 ANA tests with homogeneous pattern
    Post by: leokitten, Sep 26, 2023 in forum: 'Conditions related to ME/CFS' news and research
  18. leokitten
    Post

    Long Covid in the media and social media 2023

    SF Chronicle: UCSF is trying a new tactic to eradicate long COVID symptoms. Here’s how it works
    Post by: leokitten, Sep 23, 2023 in forum: Long Covid news
  19. leokitten
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    Sorry if I could ask here since I missed so many posts, are there any ideas as to why in some of our cells there is ER stress and the UPR can’t...
    Post by: leokitten, Sep 19, 2023 in forum: ME/CFS research
  20. leokitten
    Post

    WASF3 disrupts mitochondrial respiration and may mediate exercise intolerance in myalgic encephalomyelitis/chronic fatigue syndrome, 2023 Hwang et al

    @B_V thank you for all the hard work on this, and for providing the patient community a much needed dose of new discovery and reinvigorated hope....
    Post by: leokitten, Sep 19, 2023 in forum: ME/CFS research
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