Hi @JaimeS - I’ve had some left-sided weakness due to ME. In my first year after onset, when I was still trying to overcome the disease by...
Anticholinergic medications, when taken for long periods of time, have been shown to seriously increase your risk of getting dementia,...
My insurance plans through my employer had always paid for it without any issues. I started taking it when it was still only brand name and Dr....
Hi @Milo, no there are really not. Valganciclovir a prodrug for ganciclovir and gets rapidly converted by esterases in your liver to ganciclovir....
I took Valcyte for 2 1/2 years. I had suspected infectious onset based on initial fever and symptoms, as well as chronically very high EBV, CMV,...
One note to add to this interesting paper, is that while they've known that serum NfL isn't a very specific biomarker for Alzheimer's or other...
Thanks @Trish! Everyone a new related poll is up...
A note for those who use sleep medication to help combat ME sleep issues - this might be more difficult to answer since the body becomes somewhat...
Sorry I changed "increasing" to "adding" as I think that is clearer
How about this. I know it's long but I hope it can capture it since I want only a single choice poll, to avoid people pick two conflicting...
I think for simplicity do you think this would work as a separate poll? Or are both dimensions important to put together in a single?
I see, so you mean a combo of the other Yeses. You have difficulty even with no exertion and also it's even worse after exertion?
Trish I don't quite understand the 2nd option?
Sorry didn't imply that you should do the experiment, but if you remember how it was like with ME and sleep before you ever did meds or if you...
What does everyone think about this new poll. I want to keep things simple yet look it from a slightly different perspective. Also, one thing...
@Milo this is exactly the same as me as described in my OP. Exertion leads to PEM and part of PEM is a cluster of nighttime symptoms including...
Wouldn't you eventually fall asleep with no meds? (like I do?) I doubt ME sleep issues would keep your body awake indefinitely? Also, how much...
To give you my data point, I had a significant change in my ability to sleep at about a year or more BEFORE getting sudden onset ME (though not...
It’s not just age of onset, I found there is also a limitation in my poll based on some of the responses in this thread, where people didn’t know...
ME has generally made me feel like I’ve been poisoned, just an overall disgusting feeling and my body telling me it is very sick. I used to get...
Separate names with a comma.
