I saw in an NIH media piece on the study that they were also looking at the ER stress inhibitor drug salubrinal and tested it on ME cells in the...
And sorry if this idea has already been hashed out and isn’t relevant, but how about clinically testing IL-1 inhibition in ME/CFS patients as...
What are thoughts on testing type I interferon inhibitor therapy in ME like is done in SLE? Since they’ve found similar levels of increased IFNa...
CAD is also known as ACOD1 and is encoded by immune responsive gene 1 (IRG1)
Parkinson’s, MS
I think because Natelson, for better or worse, doesn’t necessarily support using more restrictive criteria. I spoke to him about the various Dx...
It’s probably been said here before, but major depressive disorder (MDD) is extremely common in multiple sclerosis patients. I think it’s one of...
I think many well intentioned doctors do understand that depression isn’t ME/CFS, even though some symptoms on the surface can overlap. And many...
I guess they should’ve used an “active” placebo that also caused a similar gastro side effect as what metformin causes. Not sure how feasible that...
@Milo Even when I was less severe than I am now major travel always comes with this fear that I won’t be able to make it back! That I will...
It will be end April or early May
I’m sure many people think we are agoraphobic or something but couldn’t be further from the truth
Fortunately we have two bathrooms, and the extra bedrooms and bathroom are on the opposite side of the house down a hallway compared to the living...
I got to the point where I was in a semi-permanent crash in what I think is close to severe state for a couple months and was starting to become...
I’m actually not sure what she knows, she’s my spouse friend but we visited each other multiple times over the years and she’s gotten to know me...
I used to be able to do this and was willing to for most of the time I’ve had ME. But now it’s way worse, which I hope I’ve described in enough...
@Hutan for sure I could try to do a couple specific short events to reduce risk of PEM. That is good advice Regarding being in the bedroom. I...
@JemPD sorry I was having trouble quoting, but following your previous post I wanted to ask everyone that no matter how much you explain or show...
Yes it is hard for him. He says he sees how terrible and painful things are, during many crashes and symptom upticks I’ve given him real-time...
That’s definitely already a necessity and understood by my spouse without even needing any discussion. But even just a few hours during the...
Separate names with a comma.
