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  1. obeat
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    @Jonathan Edwards . Is there much research on fatigue mechanisms in other illness? Are fatigue conferences ever held to share ideas across...
    Post by: obeat, Dec 23, 2018 in forum: ME/CFS research
  2. obeat
    Post

    The two age peaks in onset of ME/CFS

    Perhaps teenagers start kissing at a younger age now!!
    Post by: obeat, Dec 22, 2018 in forum: Epidemiology (incidence, prevalence, prognosis)
  3. obeat
    Post

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    If Morton gets funding, can we get a preliminary statement into the media via the few journalists who think?
    Post by: obeat, Dec 20, 2018 in forum: ME/CFS research
  4. obeat
    Post

    Dr Karl Morten - UK researcher based at Oxford University

    Is this why SMC hyped the Pariante paper? Large sums of money possibly going on superior research , not done by their cronies?
    Post by: obeat, Dec 19, 2018 in forum: ME/CFS research news
  5. obeat
    Post

    World ME Alliance, was previously IAFME: International Alliance for ME

    I think I have misremembered so have deleted post.
    Post by: obeat, Dec 10, 2018 in forum: News from organisations
  6. obeat
    Post

    MEAction: " All I want for Christmas is #ScienceNotStigma"

    Sorry. I know we're getting away from the cards here. We need to be advocating behind the scenes for the next 18 months. Much of the current...
    Post by: obeat, Dec 10, 2018 in forum: Advocacy Action Alerts
  7. obeat
    Post

    MEAction: " All I want for Christmas is #ScienceNotStigma"

    The professional bodies who are stakeholders. Something like this" as stakeholders in NICE we believe it is incumbent on your organisation to be...
    Post by: obeat, Dec 10, 2018 in forum: Advocacy Action Alerts
  8. obeat
    Post

    MEAction: " All I want for Christmas is #ScienceNotStigma"

    Maybe we could draft a letter to make various stakeholders aware of all the conferences next year and suggest someone attend from Association of...
    Post by: obeat, Dec 10, 2018 in forum: Advocacy Action Alerts
  9. obeat
    Post

    MEAction: " All I want for Christmas is #ScienceNotStigma"

    I think NICE are very aware of the unease among patients. The next battle ground for patient advocacy will surely be when the draft guidelines are...
    Post by: obeat, Dec 10, 2018 in forum: Advocacy Action Alerts
  10. obeat
    Post

    Golden hour (/month)

    Do we know if ME is also more common in temperate zones?
    Post by: obeat, Dec 10, 2018 in forum: General and other signs and symptoms
  11. obeat
    Post

    Neuroinflammtion theory for Alzheimer's strikes a familiar note for pwME

    The failure of several major drug trials for AD was partially attributed to insufficient basic biological research.
    Post by: obeat, Dec 10, 2018 in forum: Other health news and research
  12. obeat
    Post

    Visual aspects of reading performance in Myalgic Encephalomyelitis (ME)

    https://www.frontiersin.org/articles/10.3389/fpsyg.2018.01468/full I did read somewhere that they thought yellow tinted glasses might help, but I...
    Post by: obeat, Dec 10, 2018 in forum: ME/CFS research news
  13. obeat
    Post

    Healthwise to "retire the GET/CBT topics" from medical content

    Great result for all your hard work @Webdog
    Post by: obeat, Dec 9, 2018 in forum: Advocacy Projects and Campaigns
  14. obeat
    Thread

    Machine learning and dementia subtypes.

    https://m.medicalxpress.com/news/2018-10-machine-uncovers-dementia-subtypes-implication.html Just thought this was interesting in relation to how...
    Thread by: obeat, Dec 8, 2018, 4 replies, in forum: Other health news and research
  15. obeat
    Post

    ME charity income versus other illness charities in the UK

    Oops! Missed your earlier post.
    Post by: obeat, Dec 7, 2018 in forum: Advocacy Projects and Campaigns
  16. obeat
    Post

    Prospective Biomarkers from Plasma Metabolomics of ME/CFS Implicate Redox Imbalance in Disease Symptomatology, 2018, Hanson et al

    If you wanted to convince a medical sceptic, which metabolomics paper would you use?
    Post by: obeat, Dec 7, 2018 in forum: ME/CFS research
  17. obeat
    Post

    ME charity income versus other illness charities in the UK

    Hope 4 ME Fibro uses a clothes bank ( big metal bins)to raise money. If there are 250 k patients in UK and they each gave £10 a year ,that would...
    Post by: obeat, Dec 7, 2018 in forum: Advocacy Projects and Campaigns
  18. obeat
    Post

    Erythrocyte Deformability As a Potential Biomarker for Chronic Fatigue Syndrome, Davis et al (2018)

    So could this reduced contact with the capillary wall partially contribute to the reduction in oxygen extraction in skeletal muscle that Systrom...
    Post by: obeat, Dec 6, 2018 in forum: ME/CFS research
  19. obeat
    Post

    Adolescent’s descriptions of fatigue, fluctuation and payback in CFS/ME: interviews with adolescents and parents, 2018, Crawley et al

    Does anyone outside the UK still consider the BMJ a high quality journal? It seems to have very low standards these days. I strongly object to the...
    Post by: obeat, Dec 5, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. obeat
    Post

    Metabolism reprogrammed by the nitric oxide signalling molecule

    I think ME biobank are sending samples to an Austrian researcher investigating NOS?
    Post by: obeat, Dec 5, 2018 in forum: Other health news and research
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