@Jenny @Wonko Robert Phair (The IDO Metabolic Trap researcher) posted on PR that he is interested to hear about sudden remission stories if you...
Dr. Emma Reinhold wrote the EDS toolkit for the RCGP's and I highly recommend folks read it with a thought on how can we do the same thing for ME!...
My two pennies worth. Suggestion : There needs to be two documents, one for GP's and one for specialists. There is no way a GP can navigate the...
Not much right now but this made me chuckle - Follow the money!!! [MEDIA] EDIT to add for those that can't see
Shoot. I cannot see them as I have an ad-blocker too, that I couldn't figure out how to turn off. Folks on Facebook can join the group by...
Thanks @Andy . That makes sense. I'd forgotten they were going to Australia 12-15th March, right before the NIH conference.
Fereshteh from Stanford Genome Technology group also hosts a closed Multi-Ohmics group on Facebook (need to request to join) where she is hosting...
Update 10th January 2019 Fereshteh Jahanbani still needs 4 HEALTHY boys aged between 14-18, LOCAL to SF Bay Area Facebook post from Nov 19th 2018...
It does look an impressive speaker list. I hope they get a good attendance from NIH staffers I'm a bit surprised that the UK ME/CFS Biobank team...
@Trish. I remember reading a post recently where you were discussing tracking people at the moment they got ill. This video is about one such...
I contacted Marilyn at OMF to let her know the concerns. This was her reply Yes. We have heard the concern loudly. I appreciate your reaching out...
It sure would be nice if the NHS could do a search of records for ESR data for patients that have an ME/CFS diagnosis. But what I hear from folks...
This is Amit's response when asked about sharing the extra details in the first "Blood" abstract [MEDIA]
Since there has been some brief talk of statins in this thread, and Stuart talked about them in the video, I felt I should mention that they may...
I read both again. The first abstract from the conference has a lot of interesting information not covered in the full text paper e.g. low ESR and...
For those interested the late Norman Booth, one of the authors, commented on the paper here...
The paper states they used fresh blood, so that will severely limit them to volunteers who live close to the test lab, and available at a time the...
Here is the meat and potatoes of the paper [ATTACH]
I believe this is his bio, listed at Monash University, Melbourne. Not sure if he is still working due to ME/CFS. Link :...
In August 2018 Michael on twitter said he was using free weekend fMRI scan time in addition to any private funding plus volunteer time. [MEDIA]
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