Blood tests to understand the immunology of Long Covid and imaging, on a large cohort. Measuring objective outcomes such as HR, oxygen saturation,...
[MEDIA] [MEDIA]
The NIHR has a funding and awards website, you can search for their names: https://fundingawards.nihr.ac.uk/search Finding their other sources of...
Here's my humble suggestion for improving NIHR research and saving the UK government millions of pounds: stop funding Esther Crawley's work and...
Before I came down with ME, I used to practice mindfulness meditation for 30-45 mins every day. I usually meditated in the evening, last thing...
Excellent piece Michiel and Evelien. Nitpick: there is a broken link in this paragraph (on the word "Studies") If necessary here is a list of...
Blog post from Millions Missing France (Google Translate):...
The HAS doesn't rate evidence stringently for rapid replies so that they can be put out quickly. Here is a translation of their methods (last page...
Yes, I'm not optimistic either. Millions Missing France was consulted and tried to push back against MUS and overzealous prescription of exercise...
This is only an annex to the full "rapid reply" from the HAS:...
:(:cry::(:cry:
In Q4 2020, the FDA and the EMA (EU equivalent of FDA) accepted Sanofi's submissions for regulatory approval for its new drug for Pompe's disease,...
In mice. ETA, from the methods: Not only is this horrible but it is also a completely unrealistic model for humans... I don't know exactly at...
An assumption from the authors before they even begin their review. Much like other "calm" exercises such as yoga, it's safe only for ME patients...
There have been RCTs of midodrine and Mestinon for POTS, and midodrine is officially indicated for the treatment of orthostatic hypertension. In...
That's been happening to me with midodrine and Mestinon over the last year. I find them a bit perverse because they reduce the symptoms of...
This might be true in the UK where things seem to be changing, but keep in mind that it won't work for the many countries that do not have...
Cost-effectiveness and diverting funds from research are very valid points. To me, most importantly, they delay the delivery of adequate care to...
But looking at the Cochrane reviews, can the panel that examines @Caroline Struthers's notification justify that there are (known) adverse effects...
I share your concern. In 2016 the French national drug authority (ANSM) issued a safety warning to healthcare professionals against the off-label...
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