Oh, totally. But also, there's the built-in stupidity of government. I don't mean that as an insult to any politician (well okay, perhaps a...
Yep. For it to work as a model, your brain would have to be able to clear most of whatever it was during a single night. That's why I find it...
Two of my colleagues could warn me when I'd gone over the line. I don't think there was a big difference in my ability to work; what they were...
Me too. It worries me that it might contribute to the effects of PEM, because being awake all night fidgeting—not to mention needing a wee every...
It's interesting, and I wonder if Covid has moved the conversation on a bit. There are numerous proposed triggers for ME/CFS, but EBV has long...
I used to teach dance to middle aged non-dancers (mostly women), and many of them were surprised by just how hard it is to hold their hands above...
Maybe it's just me, but would you not expect people with rapidly fatiguing muscles to have problems with arms-overhead activity? Many healthy...
I wonder if there's a useful question about people's access to the internet, and the impact on them of a lack of access? I don't only mean people...
Quite possibly, and very probably in some. But the suggestion was more about gaining hard data about incidence and age at onset from large...
Maybe one way to get started is to run a project where primary care providers are asked to approach patients in the early stages of suspected...
I also had to renew my blue badge whilst I was waiting in that massive queue for a PIP review. The local authority website advised me to ask for...
No. But adding friction might be enough. If you can blame it on the last government and your government's unlikely to be in power for the 10...
Thanks, that really helps!
So does a non-coding gene mean it doesn't affect protein products etc? Don't seem to have the Ladybird Book of Genetics, though I'm pretty sorted...
Maybe more accurate to say pelvis? Mine's at a funny angle because there's a big enough difference in leg length to make me limp. The blokes in...
Yup. I get a payment that, for instance, covers the cost of my powered wheelchairs and vehicles. Even though I'm using the money for its intended...
It's not even doctoral candidates who need to start by consulting with patient communities. It's their supervisors. Otherwise, by the time...
Maybe they don't realise how hard it would be to get agreement on a three-word motto here, let alone the canonical version of a consultation...
Actually, maybe this aspect is easier to explain. Infections aren't always accompanied by obvious symptoms. If a viral infection's enough to...
Maybe so if it's the Sheffield cohort. The group didn't have the funding or staff resources to visit severely affected people at home, so samples...
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