This. It seems to be ingrained at every level of healthcare, even when it's obviously nonsense. We had a right old palaver when the community...
Maybe we should take into account that part of the reason they're not coughing up is a lack of projects/ideas they think are worth following up?...
I don't think it's not my problem. But I do think it's not really my job. What are research funds for, if not to fund research? What are...
The thing is, emotional exertion is very physical. It affects your whole musculature, whether you're laughing, tense with emotional pain, or...
Thank you. Still trying to boil it down to things that are distinctive in ME/CFS, not confused by being both cause and effect, and may offer...
@Jonathan Edwards, does this phenomenon tend to occur in rheumatological or other diseases? I don't mean relief when a flare settles down, I mean...
I wonder if it's tagged as media in the hyperlink, and the forum software doesn't like it? Anyway, it's just occurred to me that it's probably on...
I have been thinking about it, but haven't really got there yet. Part of what's making me hesitate is the possibility it could be worth waiting...
Yeah, I think so. I'm in a minority of people who don't really mind it as long as it's used as a medical term. I'd never choose to use it outside...
Watch this video earlier of a guy talking about his experience of long Covid. It's quite emotional in places. It also makes clear that he's being...
And silent, that's something else to take into account. People don't always know they're bleeding internally.
Probably not. You need a lot of information about how individual charities operate to work out whether they're even eligible for funding schemes,...
See also: We might need to get our arses in gear if we want a cat's chance in hell of getting this. Right, how do we let people say what they need...
I'm trying to think about what (if anything) we really know about ME/CFS. The most basic elements. I'm tripping over words, though. One of the...
Interesting thoughts. They could even set up an automated system where people who've been members for six months get an email about an optional...
1. I'm terrible at it. I can't ask people for money, and I'm not sure I want to. 2. See above, and add that I don't know enough people to...
Perhaps because it appears to be distinctive, and most of the other symptoms are common? Some people argue PEM is ME/CFS, but that's another case...
:rofl: So about 41p a patient tops? [ATTACH] They won't all have musculoskeletal problems, but even so...at best you're looking at someone...
Maybe it's worth asking questions of those people, though, to see if there's anything else. I've had lasting spontaneous remissions. They...
Is it useful to think of things it might be? Like the gap, which seems to be necessary for what we call PEM to develop? Or the undetectability...
Separate names with a comma.
