It looks as if the subcutaneous version is a different formulation to the IV type, too, so that might account for some differences in adverse...
I agree scrutiniser / scrutineer are good. I still like Marc's idea of spelling it with a K to keep the relationship with the previous name,...
That's a great letter, Trish. I wish I had your clarity!
I guess it's possible they might be slightly different questions, but if it's only about symptoms, maybe it is the same survey? Maybe there are...
It's the /CFS bit that makes it hard. I'm not suggesting it should be dropped from the condition name, of course, just that it makes titles...
This might be revealing. No idea whether it's connected to OI, but quite a few people have said the same thing. Even when I'm feeling as well as...
It won't apply to some not-severe people either. My problems with OI are quite limiting and have resulted in falls, but the horribly-ill feeling...
I wonder if that'll exist, given that it's not very well characterised in ME/CFS. Unless it was tackled in one of the DecodeME questionnaires (I...
Do like Marc's Skrutinizer!
How many of those words really equate to sceptic, though? I mean to a human being, not a computer. Not that many. I don't think changing the...
That reminded me of an article from decades ago, about some old artefact with markings on it that experts couldn't make sense of. It was...
It hasn't, though, that's what I find so astonishing. There are people disabled by measles who aren't even old enough to retire, let alone dead!...
I'd be interested to know the reason for the question. I definitely wouldn't change it, but @ME/CFS Skeptic might have reasons I haven't thought of.
Yes, and even half of it would help. But I think this should be one for government funding. They haven't put much into ME/CFS so far, and as it's...
Yep. It's almost as if epidemic disease such as measles, and the deaths and life-changing impairments associated with it, aren't well within...
Yep, and the symptoms look very different too. Not really a picture of ME/CFS I'd recognise!
Your doctor would probably only refer if you had symptoms of what looked like a genetic condition that can't be diagnosed any other way. Most GPs...
I wonder if I'm affected by one of these, as some of my muscles go limp if I rest after activity. It only affects my arms and legs, everything...
This is what really baffles me. Inappropriate as it is, Larun et al was never a ringing endorsement. In fact if it had been for a new drug, it...
:rofl::rofl: That made me laugh so much my tickly Covid cough came back.
Separate names with a comma.
