I hadn't come across that one! Yes, it's gone thanks. It was a sore throat and a snotty nose, so well within the definition of...
I've even seen suggestions it may increase, though I don't have the wits to understand whether that's a mathematical / statistical thing to do...
Even if governments wanted to take public health action on it, it would probably be hard to get public buy-in now. So many people view Covid as a...
The only thing that's made a substantial difference to me is daily antihistamines. I used to take them on and off, assuming it wouldn't be good to...
So as PEM is defined as worsening after activity, they seem to have demonstrated that none of them have PEM. I suppose you could call that useful.
There is some of that, but is there also a sense of some of their difficulties being...self-inflicted? A choice? I overheard a conversation in a...
So many studies end in these statements, don't they. What intervention? What mitigation? :thumbsdown:
Yep. Both my mam and I had a history of blacking out if we had to stand in school assemblies, but it was nothing to do with ME/CFS. It was just...
It's possible their involvement has been quite limited, and they may have had none if they happen to be away for Christmas. There's quite a...
Yep. Ideally, most trustees aren't officers as well. It's normal for a chair to take a more active role than the other trustees. Often they're...
Mailout or email maybe?
Hear hear. And one that listens to the wider community a bit better. Their charitable objects are about providing services to people with ME, not...
Lying down's not a universal indicator of PEM, though. I lived with it for decades, but I couldn't lie down when I felt at my worst because I was...
From what I've gathered, it seems what matters is which (if any) of these documents was the most recent to be voted on and approved as the...
I guess all the stuff about frequency of PEM symptoms can be deleted. More severely affected people may rarely be free of PEM, while mildly...
My three ha'porth would be that we're at the point where members shouldn't have to ask, because it's obvious a full statement is needed clarifying...
I agree, but it's exactly why self diagnoses like MCAS don't work. People need to give their own account of their symptoms and how they affect...
Where it starts to look like you're paying your trustees to do the essential work of running the company? For what it's worth, an organisation...
I'd probably give him the benefit of the doubt, for now at least. He's unlikely to be familiar with recent thinking about how to use the name.
No, and presumably that's the one that was in force when the payments were made, and possibly still is?
Separate names with a comma.
