They might. But that doesn't explain why the same people report always feeling better with an infection. Or why the same thing should happen with...
Ditto AZ Covid vaccine. It really was EPIC for a week. Then, as you say, gone.
No, in the discussions I've had over the last 20-odd years, people didn't mean that. They talked about remissions lasting years, as periods of...
I've got a feeling Rob Phair might have posted asking for descriptions of remission experiences on S4ME. I'm pretty sure I wrote one, but I doubt...
In the messages below it says there were 25 descriptions in response to a question from Rob Phair. I don't know how many people contributed them,...
I have done, yes, when I was very unwell. My GP prescribed a compact indoor chair for me. I returned it to the NHS after a few years because I...
This is part of the problem. The message doesn't even make any sense; PIP is nothing to do with work in the first place, so why make it the...
PS: If your legs are okay to hoik the footrest upright with one heel, it's a very good way of making sharp turns through doorways easier. It...
It sounds like you found just the right chair, @Evergreen! :party: You'll get better at steering, but it's always a bit awkward. Free-spinning...
Just had my invite (UK) for the spring Covid booster. I'd half expected for there to be no more updates—it feels as if Covid's officially...
I'm not a scientist so I don't understand any of this, but does it fit with there being no shortage of "energy" (whatever that consists of) once...
Maybe it doesn't necessarily have to be? It's true I haven't come across many who experienced rapid remissions, but there are far more who first...
I don't know which clinics still offer it, only that I still come across posts in social media groups from people receiving CBT. Some are...
Of course you should be entitled to treatment—in a fair world, you'd be entitled to compensation—but it's not about ME/CFS. It's about undoing the...
Not in ME/CFS or SLE, though, surely? That'd be like trying to work out what sort of paint works best on trees. It might be interesting to see...
I'm not convinced it always is the same. I don't mean the underlying aims, more that CBT tends to be offered as a fixed course. It runs on rails,...
I don't think so. The belief that CBT can help with ME/CFS was always that, a belief. There was never any evidence. Belief is hard to change...
No idea what any of this work means, but at least I've gained a glorious new word!
Interesting article from Benefits & Work: https://www.benefitsandwork.co.uk/news/dwp-launches-entirely-bogus-green-paper-consultation
If the changes do go through, PIP's going to be a nightmare. It's bad enough now, with people waiting a year for the outcome of reassessments, but...
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