More on the appalling NSW Health LC guidelines: [MEDIA]
You can't blame patients for trying quack treatments for Long Covid when mainstream medicine is also offering quackery. In particular, they are...
I had very mild tinnitus prior to getting ME/CFS. However my tinnitus became noticeably worse the day I came down with EBV. Similar to @John Mac,...
I'm glad to see I'm not the only one who has problems with OMF's messaging and transparency. The lack of information is leading to rumour and...
I thought his name sounded familiar. As you say, he has been claiming that Long Covid was most likely just 'anxiety' for over a year. It looks...
The above article (perhaps inadvertently) makes a good point: It's a bit rich for the medical establishment to warn patients about trying...
[ATTACH] That doctors considered the above diagram on the origin of peptic ulcers to be more persuasive than the hypothesis that a bacterial...
His story is on the RN website so anything is possible. (He didn't do the LP but I suppose they were desperate for mind-over-matter anecdotes.)
I would take anything said by that twitter account with a grain of salt. The person behind that account has been trolling people with ME/CFS for...
Beth Unger (CDC) is responsible apparently: [MEDIA]
I came across this on reddit: I assume it's this meeting: I've had a look on other social media to see if this can be verified, but haven't...
Straus made his feelings abundantly clear: [ATTACH]
He also promoted the Gupta programme at one point (no doubt receiving a kickback from Gupta for doing so). He is well-meaning, but clearly isn't...
Long Covid sufferer, Gez Medinger, is again promoting quackery on youtube: [MEDIA]
In early 2004, an odd virus swept through my office. The symptoms were dry cough, terrible muscle pain, fever, headache, nausea. Everyone caught...
A colleague's sister was told her sudden concerning neurological symptoms were "all in her head". Her parents were told by a specialist that she...
I'm not sure where this should go. The Irish Times is asking for peoples' experiences with gaslighting: @Tom Kindlon
There are some reports from patients who have seen Natelson that aren't encouraging. For example. And Another.
What a shock: This is a bit rich: Medical dismissal of post-viral illness is nothing new. Had they believed and listened to ME/CFS patients...
My experience has been terrible insomnia from the day I came down with EBV. I don't think I slept at all during the first few weeks of my EBV...
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