Full title: Clinical improvement of Long-COVID is associated with reduction in autoantibodies, lipids, and inflammation following therapeutic...
The OMF one accepts people from any country, so I signed up too, just in case. The Solve Registry is only for people living in the US but the...
Same here, it was mandatory to wear masks in all healthcare settings until just a few days ago but not anymore.
Personally I don't have a 100% reduction in my interferon gamma levels. It was 3465 pg/mL for me about 5 years into my disease (after EBV). There...
Some quotes from the Twitter thread @Amw66 posted (from the same poster). A variation of this happens in my group too, although not on a large...
That's actually part of the reason why I am so hopeful about this. If they found some consistent biological difference with a BPS person like...
This gives me the strong impression that they did indeed find something then.
Basically it is OK for them to make all kinds of unsupported claims, from etiology to treatments to death threats or whatever. It is never OK to...
FB post from Michael Stingl, Austrian neurologist interested in ME/CFS and who is also actively trying to help the situation of pwME. FB translation:
An interview in British Vogue with American actress Selma Blair, who has MS. It can’t be an easy story to tell. Born into a Jewish...
As I had said earlier in this thread, my GP told me to check my EBV antibody levels every year, just in case, for our own amusement, I guess. Last...
I've just posted it on my website, FB page of the website, FB group (and Twitter, although this one is very new and I don't have followers there...
I just posted about the cancer-related fatigue study which doesn't seem to be about cancer after all: USA: NIH National Institutes of Health news
The link does seem to work now, here is the abstract, it doesn't seem to be about cancer: Not impressed by the potential bidirectional...
@rvallee @Kitty The other moderator I have in my ME/CFS FB group is a covid long hauler who lives in the UK. She really wanted to participate but...
From what I remember, there needed to be consensus on which symptoms were of critical importance and at least 70% of the responses had to agree....
This is the thread for the study:...
https://www.gavi.org/vaccineswork/what-happens-when-you-dont-recover-epstein-barr-virus The author says she had ME/CFS after EBV. (About the...
I think this shows that the problem is not simply the lack of money to do enough research but the inability to give the money to the right people...
Unfortunately it is more due to what the market has to offer. :) There is a lot of bigotry here in general. When I was still planning to have kids...
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