Just sent this to the Ministry of Interior and the Health Colleges so that they are aware that I know about this. It may be a bit harsh near the...
I met János Réthelyi, head of Psychiatry and Beáta Sebestyén from the Ministry. Réthelyi said he is someone who loves patient advocacy and...
So the story in short (this is mostly what you could read from me about the process if you followed my advocacy - newer info in the next post...
Oh and some "fun" tidbit" from the beginning: "The authors dedicate their study, prepared at the request of the Editorial Board of the Medical...
No, and I only know this because I bought the paper so that I can see it. Most papers in this journal are free to read, btw.
This is the Hungarian consensus recommendation for ME/CFS. It is bad news. As some of you may know, I was allowed to see the text before...
Interdisciplinary consensus statement about the diagnosis and treatment of chronic fatigue syndrome/myalgic encephalomyelopathy Simonyi Gábor dr...
Recently a new member joined my group and asked a question about how she was supposed to do exercise as she is just not capable without triggering...
Full title: Understanding symptom clusters, diagnosis and healthcare experiences in myalgic encephalomyelitis/chronic fatigue syndrome and long...
I don't really know too much about MS but I watched the documentary about Selma Blair, an actress who has MS. And there was a scene where she was...
Mahdi Bagherpoor Helabad, Irina Matlahov, Raj Kumar, Jan O. Daldrop, Greeshma Jain, Markus Weingarth, Patrick C. A. van der Wel & Markus S....
I'm kind of getting the feeling Mitodicure is the new BC 007. People keep sharing posts about it in my group. There is also this new book that...
I encounter this error page every once in a while when checking the Hungarian repositories and I have no idea what is going on when it shows up....
I'm not sure that's why. I think the comma and the period are simply used in the opposite way (at least here in Hungary but I guess elsewhere...
They don't mention ME/CFS, only chronic fatigue, the symptom and say for example: Exercise therapy usually has no significant effect on chronic...
Abstract Objective Although SARS-CoV-2 primarily targets the respiratory system, there is evidence that it can also infect the central nervous...
Abstract Background/Objectives: Headache is one of the most common neurological symptoms associated with COVID-19, affecting approximately 25% of...
I think the show you are talking about is called Once Upon a Time... Life in English and many kids watched it all over the world. :) I even posted...
This is really appalling, especially if you remember how things went down for pwME in the Czech Republic a few years ago. The patient org wanted...
Abstract Background: This study aims to explore the perceptions and clinical approaches of pain management specialists toward myalgic...
Separate names with a comma.
