Yes I think symptom management is used as a term in many chronic conditions? And it establishes that the symptoms exist, if they didn’t then why...
I agree, the “management” part isn’t great. But establishing we have symptoms which need to be mananged is good, I think. Energy is a “red...
It’s going to make it really hard for people to say “have you tried…”
At the risk of going on about this, I feel like symptom management takes away the patient-blaming, and allows for discussion about what the...
I’m going with symptom management. If I can, I’ll manage my symptoms so they don’t get out of hand. But sometimes they’re unmanageable. They...
How about a campaign where we self-advocate for access to an experienced clinician?
Has there been research on “pacing” as we understand it? and why are Gladwell’s patients getting preference in developing guidance? What if I...
I think I’d go for wax and wane. The energy comes, the energy goes, as sure as the moon grows and shrinks in the sky, and sometimes there’s an...
Well if you go to a baker, you’re going to get bread. Engage a physio, you’ll get physio.
Did we ever determine who his professional registration is with? Is he a medical Dr or a PhD Dr?
Do you promise that, if I say I don’t believe in them….:speechless:
Oh. I did wonder if he was “getting all up in” Maeve’s case and it seems I was right. Poor Sarah.
Exactly, none of us are going to Ibiza for a 48hour rave then going “ooopsie, might have overdone it a bit, silly me” these “booms” are just...
But “boom and bust” as a reasoning for GET? And it’s CBT friend. It just never made sense to me. Do some exercise, then do more of it the...
Maybe they only exist if you believe in them, so if you don’t demonstrate an effort preference for believing what you’re told over what you’ve...
And social media suggests we are not the only ones writing a letter, comments on SM are also critical.
We know exercise can release endorphins. A bit of exercise coupled with feeling ok and achieving something is going to boost the average mood.
Boom and bust has the air of irresponsibly doesn’t it.
Thank you for writing this! It’s speaking to my soul. I don’t know if anyone has ever studied how many pwME had a catholic upbringing, butI’m...
Thanks for doing this @Trish
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